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促进农村居民参与临床试验:农村公共图书馆员临床试验基础知识编程和培训。

Promoting rural residents' participation in clinical trials: clinical trials basics programming and training for rural public librarians.

出版信息

J Med Libr Assoc. 2023 Jul 10;111(3):722-727. doi: 10.5195/jmla.2023.1650.

DOI:10.5195/jmla.2023.1650
PMID:37483365
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10361552/
Abstract

BACKGROUND

Having diverse representation in clinical trial participation is important. Historically, rural residents have been underrepresented in clinical trial research. Public librarians have an opportunity to promote clinical trial participation among rural residents by offering consumer health information services that help patrons to understand what clinical trials are and how they can find relevant clinical trials.

CASE PRESENTATION

A consumer health library and a clinical trial center located at a large academic medical center collaborated to provide clinical trial information programming to rural public libraries. The group was awarded a Network of the National Library of Medicine (NNLM) Community Outreach Grant and was able to plan, develop, promote, and implement programs including training workshops, a speaker event, and a book discussion to rural public librarians.

DISCUSSION

Marketing the programs to rural public libraries was difficult and many barriers were encountered. Though registration and subsequent participation were low, participants expressed interest and gratitude for the programs. For any future programs targeting this population, further strategies will need to be implemented to ensure increased registrations and attendees.

摘要

背景

在临床试验参与方面具有多样性代表意义很重要。从历史上看,农村居民在临床试验研究中代表性不足。公共图书馆员有机会通过提供消费者健康信息服务来促进农村居民参与临床试验,帮助顾客了解临床试验是什么以及如何找到相关的临床试验。

案例介绍

一个位于大型学术医疗中心的消费者健康图书馆和一个临床试验中心合作,为农村公共图书馆提供临床试验信息编程。该团队获得了国家医学图书馆网络(NNLM)社区外联赠款,并能够规划、开发、推广和实施包括培训研讨会、演讲活动和图书讨论在内的项目,以针对农村公共图书馆员。

讨论

向农村公共图书馆营销这些项目很困难,遇到了许多障碍。尽管注册和随后的参与率很低,但参与者对这些项目表示了兴趣和感谢。对于任何针对这一人群的未来项目,都需要实施进一步的策略,以确保增加注册人数和参与者人数。

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引用本文的文献

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Signals for change: A regional examination of rural clinical trial participant perspectives on values, health behaviors, and motivations for enrollment and retention in remote settings.变革信号:对农村临床试验参与者在价值观、健康行为以及参与和留在偏远地区试验的动机方面观点的区域考察
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本文引用的文献

1
Crossing the Brooklyn Bridge: a health literacy training partnership before and during COVID-19.跨越布鲁克林大桥:新冠疫情前后的健康素养培训合作伙伴关系。
J Med Libr Assoc. 2021 Jan 1;109(1):90-96. doi: 10.5195/jmla.2021.1014.
2
Promoting clinical research to medically underserved communities: current practices and perceptions about clinical trial recruiting strategies.促进针对医疗服务不足社区的临床研究:关于临床试验招募策略的当前实践与认知。
Contemp Clin Trials. 2015 Mar;41:39-44. doi: 10.1016/j.cct.2014.12.010. Epub 2014 Dec 23.
3
Barriers to medical research participation as perceived by clinical trial investigators: communicating with rural and african american communities.临床试验研究者所认为的参与医学研究的障碍:与农村和非裔美国社区的沟通
J Health Commun. 2015;20(1):88-96. doi: 10.1080/10810730.2014.908985. Epub 2014 Sep 10.
4
Public library consumer health information pilot project: results of a National Library of Medicine evaluation.公共图书馆消费者健康信息试点项目:美国国立医学图书馆评估结果
Bull Med Libr Assoc. 2000 Oct;88(4):314-22.