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促进农村居民参与临床试验:农村公共图书馆员临床试验基础知识编程和培训。

Promoting rural residents' participation in clinical trials: clinical trials basics programming and training for rural public librarians.

出版信息

J Med Libr Assoc. 2023 Jul 10;111(3):722-727. doi: 10.5195/jmla.2023.1650.

Abstract

BACKGROUND

Having diverse representation in clinical trial participation is important. Historically, rural residents have been underrepresented in clinical trial research. Public librarians have an opportunity to promote clinical trial participation among rural residents by offering consumer health information services that help patrons to understand what clinical trials are and how they can find relevant clinical trials.

CASE PRESENTATION

A consumer health library and a clinical trial center located at a large academic medical center collaborated to provide clinical trial information programming to rural public libraries. The group was awarded a Network of the National Library of Medicine (NNLM) Community Outreach Grant and was able to plan, develop, promote, and implement programs including training workshops, a speaker event, and a book discussion to rural public librarians.

DISCUSSION

Marketing the programs to rural public libraries was difficult and many barriers were encountered. Though registration and subsequent participation were low, participants expressed interest and gratitude for the programs. For any future programs targeting this population, further strategies will need to be implemented to ensure increased registrations and attendees.

摘要

背景

在临床试验参与方面具有多样性代表意义很重要。从历史上看,农村居民在临床试验研究中代表性不足。公共图书馆员有机会通过提供消费者健康信息服务来促进农村居民参与临床试验,帮助顾客了解临床试验是什么以及如何找到相关的临床试验。

案例介绍

一个位于大型学术医疗中心的消费者健康图书馆和一个临床试验中心合作,为农村公共图书馆提供临床试验信息编程。该团队获得了国家医学图书馆网络(NNLM)社区外联赠款,并能够规划、开发、推广和实施包括培训研讨会、演讲活动和图书讨论在内的项目,以针对农村公共图书馆员。

讨论

向农村公共图书馆营销这些项目很困难,遇到了许多障碍。尽管注册和随后的参与率很低,但参与者对这些项目表示了兴趣和感谢。对于任何针对这一人群的未来项目,都需要实施进一步的策略,以确保增加注册人数和参与者人数。

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