Alcohol Tobacco and Other Drug Association ACT (ATODA), Canberra, Australian Capital Territory, Australia.
School of Population Health, UNSW Sydney, Sydney, New South Wales, Australia.
Health Expect. 2023 Dec;26(6):2151-2163. doi: 10.1111/hex.13829. Epub 2023 Jul 29.
Patient-reported measures that assess satisfaction and experience are increasingly utilised in healthcare sectors, including the alcohol and other drug (AOD) sector. This scoping review identifies how and to what extent people accessing AOD services have been involved in the development of satisfaction and experience measures to date.
PubMed, EMBASE, CINAHL, Scopus, ProQuest, Google and Google Scholar were searched. Included papers described the development and/or implementation of a multiple-item measure of patient-reported experience or satisfaction specifically for people accessing AOD treatment and/or harm reduction programmes. If there was more than one paper, key papers were chosen that described each measure. The method of development, including service user involvement, was assessed against a framework generated for this review. Two reviewers were involved at each stage.
Thirty measures-23 satisfaction and 7 experience-were identified. Sixteen measures reported some level of involvement by people accessing AOD services in their development, although, for most measures, at a relatively low level. This involvement increased over the time span of the review becoming more frequent in later years. Only four measures were developed for use in harm reduction-specific settings, and fewer than half reported undertaking analysis of underlying scale structure and constructs.
Several gaps could be addressed to enhance the measurement of patient-centred care in the AOD sector, including: developing experience measures for use in harm reduction settings and across various AOD settings in a service system; improved reporting of psychometric properties of these measures and increasing commitment to the meaningful involvement of AOD service users in measure development.
This scoping review is part of a broader codesign project that involves a partnership between the peak organisation for AOD services and the peer-based AOD consumer organisation in the Australian Capital Territory, Australia. These organisations are working closely together to engage with AOD service users, service providers and policy makers in this codesign project. As such, the Executive Director of the peer-based AOD consumer organisation is involved as a co-author of this scoping review.
在包括酒精和其他药物（AOD）领域在内的医疗保健领域，越来越多地使用评估满意度和体验的患者报告措施。本范围界定审查确定了迄今为止，接受 AOD 服务的人在多大程度上参与了满意度和体验措施的开发。
检索了 PubMed、EMBASE、CINAHL、Scopus、ProQuest、Google 和 Google Scholar。纳入的论文描述了专门针对接受 AOD 治疗和/或减少伤害方案的患者报告体验或满意度的多项目措施的开发和/或实施。如果有不止一篇论文，则选择描述每个措施的关键论文。根据本审查生成的框架评估了开发方法，包括服务使用者的参与度。两位审查员在每个阶段都参与其中。
确定了 30 项措施 - 23 项满意度和 7 项体验 - 其中 16 项措施报告说，接受 AOD 服务的人在其开发过程中有一定程度的参与，尽管对于大多数措施而言，参与程度相对较低。这种参与随着审查的时间跨度而增加，在后期更为频繁。只有四项措施是为减少伤害特定环境而开发的，不到一半的措施报告了对基础量表结构和构建的分析。
为了提高 AOD 部门以患者为中心的护理的衡量标准，可以解决一些差距，包括：为减少伤害环境和服务系统中的各种 AOD 环境开发体验措施；改进这些措施的心理测量特性报告，并增加对 AOD 服务使用者在措施开发中的有意义参与的承诺。
本范围界定审查是更广泛的共同设计项目的一部分，该项目涉及澳大利亚首都领地的 AOD 服务的最高组织与基于同行的 AOD 消费者组织之间的合作。这些组织正在密切合作，在这个共同设计项目中与 AOD 服务使用者、服务提供者和政策制定者合作。因此，基于同行的 AOD 消费者组织的执行主任作为本范围界定审查的共同作者参与其中。
