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癌症患儿家庭的精神应对:一项定性研究。

Spiritual Coping Among Families of Children With Cancer: A Qualitative Study.

机构信息

Clinical Psychology and Behavioural Health Program, Center for Community Health Studies (ReaCH), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.

Department of Pediatrics, Universiti Kebangsaan Malaysia Medical Centre, Kuala Lumpur, Malaysia.

出版信息

Asia Pac J Public Health. 2023 Sep;35(6-7):408-412. doi: 10.1177/10105395231190830. Epub 2023 Jul 29.

DOI:10.1177/10105395231190830
PMID:37515530
Abstract

The impact of a childhood cancer diagnosis precipitates caregiver's engagement in spiritual coping. This study aimed to explore spirituality among Malaysian Muslim caregivers of children with acute lymphoblastic leukemia. A total of 13 eligible caregivers participated in this qualitative semi-structured interview via purposive sampling. Each interview was audio recorded, transcribed verbatim, and analyzed using NVivo 12 via thematic analysis. Three main themes revolved around hope through the act of praying and recitation (du'ā' and dhikr), acceptance of God's will (redha), and faith toward God as the Provider of sustenance (rezeki). The findings of this study contribute to a holistic supportive care system in pediatric oncology as it informs health care providers the role of spirituality in mitigating the emotional impact of a cancer diagnosis and promoting psychological adaptation. As a multicultural country, future studies may explore spirituality in other cultures and religion in the country.

摘要

儿童癌症诊断会促使照顾者进行精神应对。本研究旨在探讨马来西亚穆斯林照顾者对急性淋巴细胞白血病患儿的灵性。共有 13 名符合条件的照顾者通过目的抽样参与了这项定性半结构式访谈。每次访谈均进行录音、逐字转录,并使用 NVivo 12 通过主题分析进行分析。三个主要主题围绕着通过祈祷和诵经(du'ā'和dhikr)的行为产生的希望、接受真主的旨意(redha)以及对真主作为供养者的信仰(rezeki)。本研究的结果为儿科肿瘤学的整体支持性护理系统做出了贡献,因为它告知医疗保健提供者灵性在减轻癌症诊断的情绪影响和促进心理适应方面的作用。作为一个多元文化的国家,未来的研究可能会探讨该国其他文化和宗教中的灵性。

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