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沙特阿拉伯新生儿听力筛查项目中的失访情况。

Loss to follow-up in a newborn hearing screening program in Saudi Arabia.

机构信息

Department of Health Communication Sciences, College of Health and Rehabilitation Sciences, Princess Nourah bint Abdulrahman University, PO Box 84428, Riyadh, 11671, Saudi Arabia.

Department of Health Communication Sciences, College of Health and Rehabilitation Sciences, Princess Nourah bint Abdulrahman University, PO Box 84428, Riyadh, 11671, Saudi Arabia.

出版信息

Int J Pediatr Otorhinolaryngol. 2023 Sep;172:111688. doi: 10.1016/j.ijporl.2023.111688. Epub 2023 Jul 24.

Abstract

OBJECTIVES

Newborn hearing screening (NHS) program was officially initiated in Saudi Arabia in 2016. Although the rate of follow-up default is considered one of the major challenges to the NHS program, no studies have investigated the NHS rate of follow-up default and its reasons in Saudi Arabia. This study aimed to investigate the rate of follow-up default in a hospital-based NHS program and the possible reasons for it.

METHODS

All newborns who were delivered at a tertiary hospital-based NHS program between June 2020 and February 2022 were retrospectively included. The number of live births, newborns who passed NHS, newborns who referred NHS, and newborns who did not complete the appropriate screening or diagnostic stages were reviewed. In a prospective study, parents of all newborns who defaulted the follow-up on screening or diagnosis were telephonically interviewed about the reasons for their follow-up default.

RESULTS

In total, 2312 newborns were screened. Screening coverage of 96% and referral rate of 0.6% were found, which align well with the international benchmark. The follow-up default was 18%, which was higher than the benchmark. Parents of all newborns who defaulted the follow-up (n = 424) were also included. The most frequent reasons for follow-up default were related to the parents' unawareness of the recommended follow-up screening (39.5%) and their perception that follow-up was not necessary (24.7%). Coronavirus disease 2019 was also reported by 15.8% of the parents as a reason for follow-up default.

CONCLUSION

Lack of knowledge regarding recommendations made for follow-up and the importance of NHS were the most common reasons for default. Reducing follow-up defaults is essential for successful NHS programs, which can be achieved by implementing a tracking system to remind and encourage parents. Further studies are needed to evaluate the national NHS and investigate the reasons for follow-up defaults from different demographic regions in Saudi Arabia.

摘要

目的

新生儿听力筛查(NHS)计划于 2016 年在沙特正式启动。尽管后续失访率被认为是 NHS 计划的主要挑战之一,但尚无研究调查沙特 NHS 的后续失访率及其原因。本研究旨在调查基于医院的 NHS 计划中的后续失访率及其可能的原因。

方法

回顾性纳入 2020 年 6 月至 2022 年 2 月期间在一家基于医院的 NHS 计划中分娩的所有新生儿。审查活产儿数量、通过 NHS 的新生儿数量、转诊 NHS 的新生儿数量以及未完成适当筛查或诊断阶段的新生儿数量。在一项前瞻性研究中,对所有在筛查或诊断时失访的新生儿的父母进行电话访谈,了解其失访的原因。

结果

共筛查了 2312 名新生儿。筛查覆盖率为 96%,转诊率为 0.6%,与国际基准相符。失访率为 18%,高于基准。所有失访新生儿的父母(n=424)也被纳入研究。失访的最常见原因与父母对推荐的后续筛查不了解(39.5%)以及他们认为随访没有必要(24.7%)有关。15.8%的父母还报告了 2019 年冠状病毒病(Coronavirus disease 2019,COVID-19)是失访的原因。

结论

缺乏有关 NHS 后续建议的知识以及 NHS 的重要性是失访的最常见原因。减少 NHS 的失访率对于成功实施 NHS 计划至关重要,可以通过实施跟踪系统来提醒和鼓励父母。需要进一步研究来评估沙特的全国 NHS,并调查沙特不同地区 NHS 后续失访的原因。

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