School of Nursing, Abadan University of Medical Sciences, Abadan, Iran.
Department of Nursing, School of Nursing and Midwifery, Shahroud University of Medical Sciences, Shahroud, Iran.
Front Public Health. 2023 Jul 13;11:1115311. doi: 10.3389/fpubh.2023.1115311. eCollection 2023.
Family caregivers of patients with multiple sclerosis (MS) are at risk of care burden that may lead to a detrimental effect on their quality of life (QoL), physical and mental well-being. This study aimed to determine the effect of the family-centered empowerment model (FCEM) on the care burden of caregivers of patients with MS.
This quasi-experimental study was conducted using convenience sampling on 60 caregivers of patients referring to the Multiple Sclerosis Clinic in Ghaem Hospital, Mashhad, Iran. The participants were assigned to FCEM and control groups based on the days they were referred to the MS clinic. Data collection tools included the Zarit Caregiver Burden Inventory (CBI), completed in the intervention and control groups before and 1 month after the intervention. The support based on FCEM was provided during eight 45-60-min sessions, and the control group received the medical center's routine training. Data were analyzed by Chi-square, independent -test, analysis of covariance, and repeated measure tests.
The results of the present study showed that all demographic characteristics were homogeneous at the baseline. Before the intervention, no significant difference was observed between the two groups regarding mean scores of care burden. Based on the repeated measure test, there was no significant treatment and time interaction in changes in care burden.
The FCEM has no significant effect in alleviating the care burden. It is recommended to observe the necessary considerations regarding the context of this type of intervention and to carry out further investigations in different intervals.
多发性硬化症（MS）患者的家庭照顾者存在着照顾负担的风险，这可能对他们的生活质量（QoL）、身心健康产生不利影响。本研究旨在确定以家庭为中心的赋权模式（FCEM）对 MS 患者照顾者照顾负担的影响。
本准实验研究采用便利抽样法，选取了 60 名来自伊朗马什哈德盖姆医院多发性硬化症诊所的 MS 患者的照顾者。根据他们到 MS 诊所就诊的日期，将参与者分为 FCEM 组和对照组。数据收集工具包括 Zarit 照顾者负担量表（CBI），在干预组和对照组在干预前和干预后 1 个月进行填写。基于 FCEM 的支持在 8 个 45-60 分钟的会议期间提供，对照组接受医疗中心的常规培训。采用卡方检验、独立 t 检验、协方差分析和重复测量检验进行数据分析。
本研究结果表明，所有人口统计学特征在基线时均具有同质性。在干预前，两组照顾负担的平均得分没有显著差异。基于重复测量检验，照顾负担变化的治疗和时间交互作用没有显著差异。
FCEM 对减轻照顾负担没有显著效果。建议观察这种干预类型的必要考虑因素，并在不同的时间间隔进行进一步的调查。
