Kadiroğlu Türkan, Altay Gamzegül, Akay Gamze, Can Bayrak Çiğdem
Faculty of Nursing, Atatürk University, Erzurum, Turkey.
Faculty of Health Sciences, Recep Tayyip Erdogan University, Rize, Turkey.
J Community Genet. 2023 Dec;14(6):555-564. doi: 10.1007/s12687-023-00659-7. Epub 2023 Aug 3.
This study was planned to determine maternal attitudes and knowledge about newborn screening. The universe of the descriptive study consisted of postpartum mothers living in the centers of three provinces in the north and east of Turkey. The sample included mothers who were older than 18 years of age, who could read and write Turkish, whose babies were in the 24th and 72nd hour after birth, and who volunteered to take part in the study. The study was completed with 407 mothers. The data were collected with the face-to-face interview method by the researchers using the "Descriptive Information Form" and the "Maternal Attitudes and Knowledge Survey about Newborn Screening." The results showed that 40.3% of the mothers were between the ages of 25 and 30 years, 52.8% received information about newborn screening, 61.1% received this information during pregnancy (27.3% in the first trimester and 33.8% in the last trimester), and most of the information was provided by a healthcare professional (77.8%). Mothers with only one child (p = .001) and those with nuclear families (p = .024) were found to have lower maternal attitudes and knowledge about newborn screening. The study showed that the level of knowledge of Turkish mothers about newborn screening is inadequate in general. In particular, the knowledge and attitudes of mothers with nuclear families, those with one child, and those not having regular check-ups during pregnancy are inadequate. Improving mothers' understanding of screening tests will lead to more successful screening program implementation and earlier detection and care of newborns with a disease.
本研究旨在确定母亲对新生儿筛查的态度和知识。该描述性研究的总体包括居住在土耳其北部和东部三个省份中心地区的产后母亲。样本包括年龄超过18岁、会读写土耳其语、其婴儿处于出生后第24小时和72小时且自愿参与研究的母亲。该研究共纳入407名母亲。研究人员通过面对面访谈的方式，使用“描述性信息表”和“母亲对新生儿筛查的态度和知识调查问卷”收集数据。结果显示，40.3%的母亲年龄在25至30岁之间，52.8%的母亲收到过关于新生儿筛查的信息，61.1%的母亲在孕期收到此信息（孕早期为27.3%，孕晚期为33.8%），且大部分信息由医疗保健专业人员提供（77.8%）。发现只有一个孩子的母亲（p = 0.001）和核心家庭的母亲（p = 0.024）对新生儿筛查的态度和知识较低。该研究表明，土耳其母亲对新生儿筛查的知识水平总体上不足。特别是，核心家庭的母亲、只有一个孩子的母亲以及孕期未进行定期检查的母亲的知识和态度不足。提高母亲对筛查测试的理解将有助于更成功地实施筛查项目，并更早地发现和护理患病新生儿。
