Arleo Timothy L, Swerdlin Rachel F, Gill Anne E, Goudy Steven L, Meisel Jonathan A, Briones Michael A, Shah Jay H, Wright Allyson, Hawkins Clifford Matthew
Emory University School of Medicine.
Children's Healthcare of Atlanta, Vascular Anomalies Clinic.
J Pediatr Hematol Oncol. 2023 Oct 1;45(7):e847-e856. doi: 10.1097/MPH.0000000000002740. Epub 2023 Aug 4.
The aim of this study was to quantify and describe baseline patient and parent-proxy health-related quality of life scores in patients with low-flow vascular malformations at a single, tertiary-care vascular anomalies clinic.
This is a retrospective study of data collected on patients with low-flow vascular malformations between the ages of 2 to 25 who were seen at a single, tertiary-care center vascular anomalies clinic. A total of 266 patients are included in this study.
Patients with lymphatic malformations report decreased quality of life scores as compared with venous malformations in the emotional, psychological, school, and social domains. Patients with lower extremity malformation report decreased quality of life scores as compared with head/neck, trunk, upper extremity, and multifocal malformations; most notably in the physical domain.
Treatment of low-flow vascular malformations should aim to improve patient quality of life. The use of standardized health-related quality of life measures in this study quantifies baseline quality of life scores among patients with low-flow vascular malformations.
本研究旨在对一家三级医疗血管异常诊所中低流量血管畸形患者的基线患者及家长代理健康相关生活质量评分进行量化和描述。
这是一项对在一家三级医疗中心血管异常诊所就诊的2至25岁低流量血管畸形患者收集的数据进行的回顾性研究。本研究共纳入266例患者。
与静脉畸形患者相比，淋巴管畸形患者在情感、心理、学校和社交领域的生活质量评分降低。与头/颈、躯干、上肢和多灶性畸形患者相比，下肢畸形患者的生活质量评分降低；最明显的是在身体领域。
低流量血管畸形的治疗应旨在提高患者的生活质量。本研究中使用标准化的健康相关生活质量测量方法对低流量血管畸形患者的基线生活质量评分进行了量化。
