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BETTER 创伤性脑损伤过渡性护理干预:一项可行性研究。

The BETTER Traumatic Brain Injury Transitional Care Intervention: A Feasibility Study.

机构信息

Duke University School of Nursing, Durham, NC, USA.

Duke University School of Medicine, Durham, NC, USA.

出版信息

West J Nurs Res. 2023 Oct;45(10):902-912. doi: 10.1177/01939459231189786. Epub 2023 Aug 4.

DOI:10.1177/01939459231189786
PMID:37542381
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10947151/
Abstract

This study aimed to investigate the feasibility, acceptability, and clinical outcome measures of BETTER (rain Injury ducation, raining, and herapy to nhance ecovery), a culturally tailored traumatic brain injury (TBI) transitional care intervention, among diverse younger adult patients with TBI (age 18-64) and their caregivers. Trained clinical interventionists addressed patient/family needs; established goals; coordinated post-hospital care and resources; and provided patient/family training on self- and family-management coping skills. Fifteen dyads enrolled ( = 31, 15 patients, 16 caregivers). All completed baseline data; 74.2% ( = 23; 10 patients, 13 caregivers) completed 8-week data; 83.8% ( = 26; 13 each) completed 16-week data. Approximately 38% ( = 12, 3 patients, 9 caregivers) completed acceptability data, showing positive experiences (mea = 9.25, range 0-10; SD = 2.01). Overall and mental quality of life (QOL) scores did not differ over time but physical QOL scores did improve over time (baseline: 30.3, 8 weeks: 46.5, 16 weeks: 61.6; p = 0.0056), which was considered to be a suitable outcome measure for a future trial. BETTER is a promising intervention with implications to improve TBI care standards. Research is needed to determine efficacy in a randomized trial.

摘要

本研究旨在探讨 BETTER(rain Injury ducation, raining, and herapy to nhance ecovery,一种针对文化差异的创伤性脑损伤(TBI)过渡性护理干预措施)的可行性、可接受性和临床结果衡量标准,该研究纳入了不同的年轻成年 TBI 患者(18-64 岁)及其照顾者。经过培训的临床干预人员满足患者/家庭的需求;制定目标;协调医院后的护理和资源;并对患者/家庭进行自我和家庭管理应对技能培训。共纳入了 15 对患者和照顾者(=31,15 名患者,16 名照顾者)。所有患者均完成了基线数据;74.2%(=23,10 名患者,13 名照顾者)完成了 8 周的数据;83.8%(=26,13 名患者,13 名照顾者)完成了 16 周的数据。约 38%(=12,3 名患者,9 名照顾者)完成了可接受性数据,显示出积极的体验(均值=9.25,范围 0-10;标准差=2.01)。总体和心理健康生活质量(QOL)评分随时间没有差异,但身体 QOL 评分随时间有所提高(基线:30.3,8 周:46.5,16 周:61.6;p=0.0056),这被认为是未来试验的合适结果衡量标准。BETTER 是一种有前途的干预措施,对改善 TBI 护理标准具有重要意义。需要进一步的研究来确定其在随机试验中的疗效。

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引用本文的文献

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PLoS One. 2024 Feb 23;19(2):e0296083. doi: 10.1371/journal.pone.0296083. eCollection 2024.

本文引用的文献

1
"If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention.“如果你尊重我,你就是在尊重我的文化”:个性化 TBI 过渡性护理干预的方法和建议。
Brain Inj. 2023 Jul 3;37(8):746-757. doi: 10.1080/02699052.2023.2208881. Epub 2023 May 5.
2
Design, methods, and baseline characteristics of the Brain Injury Education, Training, and Therapy to Enhance Recovery (BETTER) feasibility study: a transitional care intervention for younger adult patients with traumatic brain injury and caregivers.创伤性脑损伤患者及其照顾者的强化康复教育、培训和治疗(BETTER)可行性研究的设计、方法和基线特征:一项针对年轻成年患者的过渡性护理干预
Curr Med Res Opin. 2022 May;38(5):697-710. doi: 10.1080/03007995.2022.2043657. Epub 2022 Mar 2.
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Estimating the minimal clinically important difference for the Physical Component Summary of the Short Form 36 for patients with stroke.评估脑卒中患者健康调查简表物理成分综合得分的最小临床重要差异。
J Int Med Res. 2021 Dec;49(12):3000605211067902. doi: 10.1177/03000605211067902.
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Age- and sex-specific predictors of inpatient rehabilitation facility discharge destination for adult patients with traumatic brain injury.年龄和性别特异性预测因素与成年创伤性脑损伤患者住院康复机构出院去向相关。
Brain Inj. 2021 Nov 10;35(12-13):1529-1541. doi: 10.1080/02699052.2021.1972453. Epub 2021 Sep 20.
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Inpatient rehabilitation facility discharge destination among younger adults with traumatic brain injury: differences by race and ethnicity.创伤性脑损伤的年轻成年人住院康复机构出院去向:按种族和民族的差异。
Brain Inj. 2021 May 12;35(6):661-674. doi: 10.1080/02699052.2021.1895317. Epub 2021 Mar 28.
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Pre- and in-hospital mortality for moderate-to-severe traumatic brain injuries: an analysis of the National Trauma Data Bank (2008-2014).创伤性脑损伤中重度患者的住院前和住院期间死亡率:对国家创伤数据库(2008-2014 年)的分析。
Brain Inj. 2021 Feb 23;35(3):265-274. doi: 10.1080/02699052.2021.1873419. Epub 2021 Feb 2.
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Transitions of care interventions to improve quality of life among patients hospitalized with acute conditions: a systematic literature review.过渡护理干预措施改善急性病住院患者的生活质量:系统文献回顾。
Health Qual Life Outcomes. 2021 Jan 29;19(1):36. doi: 10.1186/s12955-021-01672-5.
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"Just tell me in a simple way": A qualitative study on opportunities to improve the transition from acute hospital care to home from the perspectives of patients with traumatic brain injury, families, and providers.“简单地告诉我”:一项从创伤性脑损伤患者、家庭和提供者角度出发,旨在改善急性医院护理到家庭过渡的定性研究。
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Estimating minimal clinically important differences for two scales in patients with chronic traumatic brain injury.估算慢性创伤性脑损伤患者两个量表的最小临床重要差异。
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Regional Variations in Rehabilitation Outcomes of Adult Patients With Traumatic Brain Injury: A Uniform Data System for Medical Rehabilitation Investigation.成人创伤性脑损伤患者康复结局的区域差异:医疗康复研究的统一数据系统。
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