Duke University School of Nursing, Durham, NC, USA.
Duke University School of Medicine, Durham, NC, USA.
West J Nurs Res. 2023 Oct;45(10):902-912. doi: 10.1177/01939459231189786. Epub 2023 Aug 4.
This study aimed to investigate the feasibility, acceptability, and clinical outcome measures of BETTER (rain Injury ducation, raining, and herapy to nhance ecovery), a culturally tailored traumatic brain injury (TBI) transitional care intervention, among diverse younger adult patients with TBI (age 18-64) and their caregivers. Trained clinical interventionists addressed patient/family needs; established goals; coordinated post-hospital care and resources; and provided patient/family training on self- and family-management coping skills. Fifteen dyads enrolled ( = 31, 15 patients, 16 caregivers). All completed baseline data; 74.2% ( = 23; 10 patients, 13 caregivers) completed 8-week data; 83.8% ( = 26; 13 each) completed 16-week data. Approximately 38% ( = 12, 3 patients, 9 caregivers) completed acceptability data, showing positive experiences (mea = 9.25, range 0-10; SD = 2.01). Overall and mental quality of life (QOL) scores did not differ over time but physical QOL scores did improve over time (baseline: 30.3, 8 weeks: 46.5, 16 weeks: 61.6; p = 0.0056), which was considered to be a suitable outcome measure for a future trial. BETTER is a promising intervention with implications to improve TBI care standards. Research is needed to determine efficacy in a randomized trial.
本研究旨在探讨 BETTER(rain Injury ducation, raining, and herapy to nhance ecovery,一种针对文化差异的创伤性脑损伤(TBI)过渡性护理干预措施)的可行性、可接受性和临床结果衡量标准,该研究纳入了不同的年轻成年 TBI 患者(18-64 岁)及其照顾者。经过培训的临床干预人员满足患者/家庭的需求;制定目标;协调医院后的护理和资源;并对患者/家庭进行自我和家庭管理应对技能培训。共纳入了 15 对患者和照顾者(=31,15 名患者,16 名照顾者)。所有患者均完成了基线数据;74.2%(=23,10 名患者,13 名照顾者)完成了 8 周的数据;83.8%(=26,13 名患者,13 名照顾者)完成了 16 周的数据。约 38%(=12,3 名患者,9 名照顾者)完成了可接受性数据,显示出积极的体验(均值=9.25,范围 0-10;标准差=2.01)。总体和心理健康生活质量(QOL)评分随时间没有差异,但身体 QOL 评分随时间有所提高(基线:30.3,8 周:46.5,16 周:61.6;p=0.0056),这被认为是未来试验的合适结果衡量标准。BETTER 是一种有前途的干预措施,对改善 TBI 护理标准具有重要意义。需要进一步的研究来确定其在随机试验中的疗效。