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优化儿科炎症性肠病的过渡和转归管理。

Optimizing the Transition and Transfer of Care in Pediatric Inflammatory Bowel Disease.

机构信息

Division of Gastroenterology and Nutrition, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, USA; Harvard Medical School, 25 Shattuck Street, Boston, MA 02115, USA.

Division of Gastroenterology and Hepatology, Boston University School of Medicine, 72 East Concord Street, Boston, MA 02118, USA.

出版信息

Gastroenterol Clin North Am. 2023 Sep;52(3):629-644. doi: 10.1016/j.gtc.2023.05.004. Epub 2023 Jun 20.

DOI:10.1016/j.gtc.2023.05.004
PMID:37543405
Abstract

Health care transition from pediatric to adult care has been identified as a priority in the field of medicine, especially for those with chronic illnesses such as inflammatory bowel disease (IBD). Although there is no universally accepted model of preparing the pediatric patient for transfer to adult care, transition care is best accomplished in a structured and consistent manner. The authors highlight concepts for optimizing the transition of care for patients with IBD, which include setting expectations throughout adolescence with the gradual nurturing of self-management skills, preparing and assessing of readiness for transfer, and enacting a successful transfer to adult care.

摘要

医疗保健从儿科向成人护理的转变已被确定为医学领域的一个重点,特别是对于患有慢性疾病(如炎症性肠病)的患者。尽管目前还没有被普遍接受的模式来准备儿科患者向成人护理的转移,但过渡护理最好以结构化和一致的方式进行。作者强调了优化炎症性肠病患者护理过渡的概念,包括在整个青春期设定期望,逐步培养自我管理技能,准备和评估转移的准备情况,以及成功地向成人护理转移。

相似文献

1
Optimizing the Transition and Transfer of Care in Pediatric Inflammatory Bowel Disease.优化儿科炎症性肠病的过渡和转归管理。
Gastroenterol Clin North Am. 2023 Sep;52(3):629-644. doi: 10.1016/j.gtc.2023.05.004. Epub 2023 Jun 20.
2
Transition readiness in pediatric patients with inflammatory bowel disease: patient survey of self-management skills.炎症性肠病患儿的过渡准备情况:自我管理技能的患者调查
J Pediatr Gastroenterol Nutr. 2015 Jan;60(1):36-41. doi: 10.1097/MPG.0000000000000555.
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Inflammatory Bowel Disease: A Practical Path to Transitioning From Pediatric to Adult Care.炎症性肠病:从儿科到成人护理的实用过渡途径。
Am J Gastroenterol. 2019 Sep;114(9):1432-1440. doi: 10.14309/ajg.0000000000000222.
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Transition of pediatric to adult care in inflammatory bowel disease: Is it as easy as 1, 2, 3?炎症性肠病儿科至成人治疗的过渡:是否如此简单?
World J Gastroenterol. 2017 May 28;23(20):3624-3631. doi: 10.3748/wjg.v23.i20.3624.
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Chronological age when healthcare transition skills are mastered in adolescents/young adults with inflammatory bowel disease.炎症性肠病青少年/青年掌握医疗保健过渡技能时的实足年龄。
World J Gastroenterol. 2017 May 14;23(18):3349-3355. doi: 10.3748/wjg.v23.i18.3349.
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[How Can We Do Transition Successfully from Pediatric to Adult Clinics in Inflammatory Bowel Disease?].我们如何在炎症性肠病中成功地从儿科诊所过渡到成人诊所?
Korean J Gastroenterol. 2021 May 25;77(5):227-230. doi: 10.4166/kjg.2021.065.
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Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease.仅提高医疗服务提供者的意识并不能提升炎症性肠病青少年患者的过渡准备技能。
J Pediatr Gastroenterol Nutr. 2014 Aug;59(2):221-4. doi: 10.1097/MPG.0000000000000405.
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Recommendations for Successful Transition of Adolescents With Inflammatory Bowel Diseases to Adult Care.炎症性肠病青少年成功过渡至成人照护的推荐建议。
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Multimodal intervention to improve the transition of patients with inflammatory bowel disease from pediatric to adult care: protocol for a randomized controlled trial.多模式干预改善炎症性肠病患儿向成人护理过渡的效果:一项随机对照试验方案。
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Barriers and facilitators to successful transition from pediatric to adult inflammatory bowel disease care from the perspectives of providers.从医疗服务提供者的角度看,成功实现从儿科炎症性肠病护理向成人炎症性肠病护理过渡的障碍与促进因素。
Inflamm Bowel Dis. 2014 Nov;20(11):2083-91. doi: 10.1097/MIB.0000000000000136.

引用本文的文献

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The Transition Care Index: Standardizing comprehensive transition and transfer for young adults with inflammatory bowel disease.过渡护理指数:规范炎症性肠病青年患者的全面过渡与转诊
JPGN Rep. 2025 Jun 17;6(3):227-235. doi: 10.1002/jpr3.70045. eCollection 2025 Aug.
2
Patient Empowerment Among Children and Adolescents with Inflammatory Bowel Disease (IBD) and Parents of IBD Patients-Use of Counseling Services and Lack of Knowledge About Transition.炎症性肠病(IBD)患儿及青少年与IBD患者家长的患者赋权——咨询服务的使用及对过渡的知识缺乏
Children (Basel). 2025 May 10;12(5):620. doi: 10.3390/children12050620.
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Effectiveness of Transitional Care in Inflammatory Bowel Disease; Development, Validation, and Initial Outcomes of a Transition Success Score.
炎症性肠病过渡性护理的有效性;过渡成功评分的制定、验证及初步结果
J Crohns Colitis. 2025 Apr 4;19(4). doi: 10.1093/ecco-jcc/jjae166.
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Transition of care in inborn errors of immunity.免疫固有缺陷的治疗转接。
Curr Opin Allergy Clin Immunol. 2023 Dec 1;23(6):455-460. doi: 10.1097/ACI.0000000000000948. Epub 2023 Oct 5.