Stony Brook University, Stony Brook, USA.
Department of Psychology, Stony Brook University, Stony Brook, NY, 11794-2500, USA.
Clin Child Fam Psychol Rev. 2023 Sep;26(3):665-689. doi: 10.1007/s10567-023-00449-0. Epub 2023 Aug 6.
Autistic social challenges have long been assumed to arise from a lack of social knowledge ("not knowing what to do"), which has undergirded theory and practice in assessment, treatment, and education. However, emerging evidence suggests these differences may be better accounted for by difficulties with social performance ("doing what they may know"). This distinction has important implications for research, practice, policy, and community support of autistic people. This review examines the theoretical and clinical implications and empirical status of the knowledge-performance distinction in autism. Current evidence suggests that social knowledge deficits are neither definitional nor reliably related to outcomes in autism. Prioritizing social knowledge, then, may produce unanticipated, problematic consequences in terms of accuracy of assessment, intervention effectiveness, and promotion of stigma. It may also yield unrealistic expectations around the value of knowledge for autistic people and their families, yielding important ethical considerations. Conversely, recent evidence highlights performance-related factors as being especially promising for better modeling and addressing social challenges in autism. Prioritizing performance, then, may offer new directions for assessment, substantially different intervention opportunities, and novel methods of inclusion and affirmation. This review touches upon each of these domains and implications, integrates these developments with broader models of social competence in youth, and provides direction for future research and practice regarding social competence in autism.
自闭症患者的社交挑战长期以来被认为是由于缺乏社交知识(“不知道该做什么”)而导致的,这一观点为自闭症的评估、治疗和教育提供了理论和实践基础。然而,新出现的证据表明,这些差异可能更好地归因于社交表现上的困难(“知道怎么做但做不到”)。这一区别对自闭症患者的研究、实践、政策和社区支持具有重要意义。
本综述探讨了自闭症中知识-表现区分的理论和临床意义及实证现状。目前的证据表明,社交知识缺陷既不是自闭症的定义特征,也与自闭症患者的预后结果没有可靠关联。因此,优先考虑社交知识可能会在评估的准确性、干预效果以及对污名的推动方面产生意想不到的、有问题的后果。这也可能导致对自闭症患者及其家庭的知识价值产生不切实际的期望,从而引发重要的伦理问题。
相反,最近的证据强调了与表现相关的因素在自闭症的社交挑战建模和应对方面具有特别大的潜力。因此,优先考虑表现可能为自闭症的评估提供新的方向,带来截然不同的干预机会,并为包容和肯定提供新方法。
本综述探讨了这些领域及相关意义,将这些发展与年轻人社交能力的更广泛模型结合起来,并为自闭症患者的社交能力的未来研究和实践提供了方向。