J Cardiovasc Nurs. 2024;39(6):525-534. doi: 10.1097/JCN.0000000000001027. Epub 2023 Aug 8.
Informal caregivers contribute substantially to the self-care of people with heart failure (HF) by helping with concrete and interpersonal tasks. Time perception and management are essential issues among caregivers. However, investigators have not explored this topic in caregivers of people with HF.
The aim of this study was to describe the perceptions and challenges of the time management experience among caregivers who support the self-care efforts of their relatives with HF.
Adult informal caregivers of patients with HF, taking care of the patient for at least 3 months and without cognitive limitations, were recruited from Spain, Italy, and the Netherlands. Data were collected using semistructured interviews. Maryring's qualitative content analysis strategy with both a deductive and an inductive approach was used for analysis.
We enrolled 50 participants (20 Italians, 19 Spanish, and 11 Dutch). Caregivers had a mean (SD) age of 62.8 (12.8) years and were mostly female (84%). They dedicated 31.2 (SD, 21.7) hours per week to providing caring activities for their patients. After extracting 33 codes from their qualitative interview data, we summarized them into 8 categories and identified 4 main themes: (1) time for yourself, (2) house management, (3) time for the patient (dedicated to directing care), and (4) time for own socialization.
Caregivers navigate the complexity of time management by balancing dedicated time for supporting patients with HF and their own personal time.
非正式照护者通过帮助患者完成具体的和人际间的任务，为心力衰竭（HF）患者的自我护理做出了巨大贡献。时间感知和管理是照护者的重要问题。然而，研究人员尚未探讨 HF 患者照护者的这一话题。
本研究旨在描述支持 HF 患者自我护理的照护者的时间管理体验的认知和挑战。
从西班牙、意大利和荷兰招募了照顾 HF 患者至少 3 个月且无认知障碍的成年非正式照护者。使用半结构式访谈收集数据。采用玛丽林的定性内容分析策略，同时采用演绎和归纳方法进行分析。
我们纳入了 50 名参与者（20 名意大利人、19 名西班牙人和 11 名荷兰人）。照护者的平均（SD）年龄为 62.8（12.8）岁，大多数为女性（84%）。他们每周为患者提供护理活动的时间平均为 31.2（SD，21.7）小时。从他们的定性访谈数据中提取了 33 个代码后，我们将其总结为 8 个类别，并确定了 4 个主要主题：（1）自己的时间，（2）家务管理，（3）患者的时间（用于指导护理），以及（4）自己的社交时间。
照护者通过平衡用于支持 HF 患者和自己个人时间的时间来应对时间管理的复杂性。
