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加拿大炎症性肠病老年患者:护理体验和健康相关生活质量的混合方法探索性研究。

Older Adults With Inflammatory Bowel Disease in Canada: A Mixed-Methods Exploratory Study of Care Experiences and Health-Related Quality of Life.

机构信息

Noelle Rohatinsky, PhD, RN, is Associate Professor at the College of Nursing, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

Usha Chauhan, MN, NP, is Nurse Practitioner at the Hospital Hamilton Health Sciences, Hamilton, Ontario, Canada.

出版信息

Gastroenterol Nurs. 2024;47(1):41-51. doi: 10.1097/SGA.0000000000000776. Epub 2023 Aug 9.

Abstract

Literature exploring the health-related quality of life and care experiences of older adults with inflammatory bowel disease is limited despite the increasing prevalence in this population. The purpose of this study was to explore the perceived health-related quality of life and care experiences in older adults with inflammatory bowel disease in Canada. This study used a mixed-methods convergent design consisting of a descriptive, cross-sectional survey and qualitative descriptive interviews. Fifty-eight participants completed the survey and 24 participants completed interviews. Older adults reported satisfaction with inflammatory bowel disease-related care, high levels of disease control, moderate health-related quality of life, and low levels of patient-healthcare team interactions. Themes identified were (1) Experiences of inflammatory bowel disease in daily life; (2) Accessibility of inflammatory bowel disease-related health services; and (3) Communication and relationships to facilitate inflammatory bowel disease care. Ultimately, quality inflammatory bowel disease care for older adults is contingent upon communication between patients and providers, access to multidisciplinary clinics, and support networks. By ensuring these factors are present, providers and patients can work together collectively toward positive patient outcomes, enhanced satisfaction with care, and greater perceived quality of care.

摘要

尽管炎症性肠病在这一人群中的发病率不断上升,但探索老年炎症性肠病患者健康相关生活质量和护理体验的文献却很有限。本研究旨在探索加拿大老年炎症性肠病患者的感知健康相关生活质量和护理体验。本研究采用混合方法(convergent design),包括描述性、横断面调查和定性描述性访谈。58 名参与者完成了调查,24 名参与者完成了访谈。老年患者对炎症性肠病相关护理的满意度、疾病控制水平高、健康相关生活质量中等、医患互动水平低。确定的主题包括:(1)日常炎症性肠病体验;(2)炎症性肠病相关卫生服务的可及性;(3)促进炎症性肠病护理的沟通和关系。最终,为老年炎症性肠病患者提供优质护理取决于患者和提供者之间的沟通、获得多学科诊所的机会以及支持网络。通过确保这些因素的存在,提供者和患者可以共同努力,实现积极的患者结果、提高对护理的满意度和更大的感知护理质量。

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本文引用的文献

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The Impact of Inflammatory Bowel Disease in Canada 2018: Quality of Life.2018年加拿大炎症性肠病的影响:生活质量
J Can Assoc Gastroenterol. 2019 Feb;2(Suppl 1):S42-S48. doi: 10.1093/jcag/gwy048. Epub 2018 Nov 2.
6
The Impact of Inflammatory Bowel Disease in Canada 2018: Epidemiology.《2018年炎症性肠病在加拿大的影响:流行病学》
J Can Assoc Gastroenterol. 2019 Feb;2(Suppl 1):S6-S16. doi: 10.1093/jcag/gwy054. Epub 2018 Nov 2.

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