Pisu Maria, Liang Margaret I, Pressman Sarah D, Ryff Carol D, Patel Minal R, Hussein Mustafa, Williams Courtney P, Henrikson Nora B, Schoenberger Yu-Mei, Pracht Laurel J, Bradshaw Erin, Carpenter Terrell Terri, Matthis Amy, Schwartz David L, Martin Michelle Y
Division of Preventive Medicine and O'Neal Comprehensive Cancer Center, University of Alabama at Birmingham, Birmingham, AL, United States.
Division of Gynecologic Oncology, Department of Obstetrics and Gynecology, Cedars-Sinai Medical Center, Los Angeles, CA, United States.
Front Psychol. 2023 Jul 28;14:1196525. doi: 10.3389/fpsyg.2023.1196525. eCollection 2023.
The Emotional Well-Being and Economic Burden (EMOT-ECON) Research Network is one of six research networks funded by the National Institutes of Health (NIH) to advance research about emotional well-being (EWB), and the only one that focuses on addressing how economic burden due to disease or illness affects EWB. The network convened researchers, patients, patient advocates, health care providers and other stakeholders from across the US to discuss the significance of addressing the impact of the economic burden of disease on EWB, the complexity of this prevalent problem for patients and families, and the research gaps that still need to be studied to ultimately develop strategies to reduce the impact of economic burden of disease on EWB and health. Participants identified some important future areas of research as those investigating: (i) prevalent and relevant emotions for patients experiencing economic burden of disease and financial hardship, and how their broader outlook on life is impacted; (ii) constructs and contexts that influence whether the economic burden is stressful; (iii) strategies to deal and cope and their positive or negative effects on EWB and health; and (iv) multi-level and multi-stakeholder interventions to address economic factors (e.g., costs, ability to pay), administrative burdens, education and training, and especially patients' emotional as well as financial status.
情绪健康与经济负担（EMOT - ECON）研究网络是美国国立卫生研究院（NIH）资助的六个研究网络之一，旨在推进关于情绪健康（EWB）的研究，并且是唯一一个专注于解决疾病或病痛导致的经济负担如何影响情绪健康的网络。该网络召集了来自美国各地的研究人员、患者、患者权益倡导者、医疗服务提供者及其他利益相关者，以讨论解决疾病经济负担对情绪健康的影响的重要性、这一普遍问题对患者及其家庭的复杂性，以及为最终制定减少疾病经济负担对情绪健康和健康的影响的策略仍需研究的研究空白。参与者确定了一些重要的未来研究领域，包括调查：（i）经历疾病经济负担和经济困难的患者普遍存在且相关的情绪，以及他们对生活的更广泛看法如何受到影响；（ii）影响经济负担是否具有压力的因素和背景；（iii）应对策略及其对情绪健康和健康的正面或负面影响；以及（iv）解决经济因素（如成本、支付能力）、行政负担、教育和培训，特别是患者情绪及财务状况的多层次和多利益相关者干预措施。
