Mota-George Gabriela, Martinez Ashley, Dains Joyce E
From The University of Texas MD Anderson Cancer Center, Houston, Texas.
J Adv Pract Oncol. 2023 Jul;14(5):390-402. doi: 10.6004/jadpro.2023.14.5.4. Epub 2023 Jul 1.
As many as 24.7% of cancer patients are also parents to children younger than 18 years of age. This population faces unique challenges, and quality of life in parental cancer patients has not been well studied. This integrative review assessed parental cancer patients' quality of life. PubMed and Scopus were searched using the following terms: quality of life, distress, anxiety, coping, emotion, social support, employment, work, psychosocial, physical, function, parental cancer, and parents with cancer. English publications conducted within the past 15 years that used an objective instrument to measure quality of life in adult cancer patients with children 18 years of age or younger were included. Studies with an intervention focus were excluded. After review of 672 articles, nine studies met the criteria for inclusion. Several instruments were utilized to measure quality of life. Some parental cancer patients reported decreased quality of life when compared with other cancer patients and the general population at diagnosis and years after. Parental cancer patients may be at an increased risk of decreased quality of life. With this understanding, health-care providers should complete comprehensive assessments routinely so that these patients' unique needs may be more adequately addressed.
多达24.7%的癌症患者也是18岁以下儿童的父母。这一群体面临着独特的挑战，而父母患癌患者的生活质量尚未得到充分研究。这篇综合性综述评估了父母患癌患者的生活质量。我们在PubMed和Scopus数据库中使用以下检索词进行了搜索：生活质量、痛苦、焦虑、应对、情绪、社会支持、就业、工作、心理社会、身体、功能、父母患癌以及患癌父母。纳入了过去15年内发表的英文文献，这些文献使用客观工具测量了有18岁及以下子女的成年癌症患者的生活质量。聚焦于干预措施的研究被排除在外。在对672篇文章进行审查后，有9项研究符合纳入标准。使用了几种工具来测量生活质量。一些父母患癌患者报告称，与其他癌症患者以及诊断时和数年后的普通人群相比，他们的生活质量有所下降。父母患癌患者生活质量下降的风险可能更高。基于这一认识，医疗保健提供者应定期进行全面评估，以便更充分地满足这些患者的独特需求。
