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基因咨询中伤害风险的法律应对措施:来自魁北克和卡塔尔的观点

Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar.

作者信息

Patrinos Dimitri, Ghaly Mohammed, Al-Shafai Mashael, Zawati Ma'n H

机构信息

Centre of Genomics and Policy, School of Biomedical Sciences, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.

Research Center for Islamic Legislation and Ethics, College of Islamic Studies, Hamad Bin Khalifa University, Doha, Qatar.

出版信息

Front Genet. 2023 Jul 28;14:1190421. doi: 10.3389/fgene.2023.1190421. eCollection 2023.

Abstract

Genetic counseling is a fast-growing profession worldwide, with genetic counselors taking on increasingly comprehensive and autonomous roles in the healthcare sector. However, the absence of appropriate legal frameworks could potentially create risks of harm to the public. Legal recognition serves to protect the public from risk of harm by regulating the safe and competent practice of healthcare professionals. Genetic counseling is not legally recognized in most world jurisdictions. Examination of the legal status of genetic counseling in different jurisdictions and whether existing legal mechanisms are adequate to address potential risks of harm is therefore timely. This paper examines the different roles of genetic counselors in the Canadian province of Quebec and the state of Qatar, the authors' respective jurisdictions. It considers the types of harms that may be created where appropriate legal mechanisms are lacking, considering the socio-political and legal differences between the two jurisdictions. Moreover, it examines the legal status of genetic counseling in Quebec and Qatar to determine whether these statuses appropriately address the identified risks of harm. The authors argue that existing legal frameworks are inadequate to address these risks and recommend that additional regulatory mechanisms be implemented to properly protect the public from risks of harm.

摘要

遗传咨询在全球范围内是一个快速发展的职业,遗传咨询师在医疗保健领域承担着越来越全面和自主的角色。然而,缺乏适当的法律框架可能会给公众带来潜在的伤害风险。法律认可通过规范医疗保健专业人员的安全和胜任的执业行为,来保护公众免受伤害风险。在世界上大多数司法管辖区,遗传咨询并未得到法律认可。因此,审视不同司法管辖区内遗传咨询的法律地位以及现有的法律机制是否足以应对潜在的伤害风险是适时的。本文考察了遗传咨询师在加拿大魁北克省和卡塔尔国(作者各自所在的司法管辖区)所扮演的不同角色。考虑到这两个司法管辖区之间的社会政治和法律差异,本文探讨了在缺乏适当法律机制的情况下可能产生的伤害类型。此外,本文审视了魁北克和卡塔尔遗传咨询的法律地位,以确定这些地位是否能恰当地应对已识别的伤害风险。作者认为,现有的法律框架不足以应对这些风险,并建议实施额外的监管机制,以切实保护公众免受伤害风险。

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