From the Keck School of Medicine, University of Southern California, Los Angeles, California, USA.
Department of Medical Education and Department of Pediatrics, University of Illinois Chicago, Chicago, Illinois, USA.
Dermatitis. 2024 Jan-Feb;35(S1):S70-S76. doi: 10.1089/derm.2023.0111. Epub 2023 Aug 9.
Atopic dermatitis (AD) has large mental health impacts for patients and caregivers, yet their preferences regarding how to relieve these impacts are poorly understood. To understand patients' and caregivers' preferences for AD-related mental health care and support. We surveyed 279 adult AD patients and 154 caregivers of children with AD across 26 countries regarding their AD-related mental health burden, preferred strategies for improving AD-related mental health, and experiences with mental health care in AD. Caregivers reported significantly worse overall mental health ( = 0.01) and anxiety ( = 0.03) than adult patients when controlling for AD severity. Among adult patients, 58% selected treating the AD, 51% managing itch, 44% wearing clothing to cover up skin, 43% avoiding social situations, and 41% spending time alone, as strategies they felt would improve their own AD-related mental health. Caregivers selected managing itch and treating the AD most frequently for both their own (76% and 75%, respectively) and their children's (75% and 61%) mental health. Adult patients were less satisfied with mental health care from mental health providers versus nonmental health providers ( < 0.001). Effective AD management is the preferred method for improving mental health among patients as well as caregivers, who may experience the greatest mental health impacts. Self-care strategies should be considered in a shared decision-making approach.
特应性皮炎（AD）给患者和照护者带来了严重的心理健康影响，但人们对他们缓解这些影响的偏好知之甚少。为了了解患者和照护者对 AD 相关心理健康护理和支持的偏好，我们在 26 个国家/地区调查了 279 名成年 AD 患者和 154 名儿童 AD 照护者，了解他们的 AD 相关心理健康负担、改善 AD 相关心理健康的首选策略，以及 AD 相关心理健康护理的体验。在控制 AD 严重程度后，照护者报告的总体心理健康（ = 0.01）和焦虑（ = 0.03）明显差于成年患者。在成年患者中，有 58%的人选择治疗 AD，51%的人选择控制瘙痒，44%的人选择穿衣服遮盖皮肤，43%的人选择避免社交场合，41%的人选择独自消磨时间，这些人认为这些策略可以改善自己的 AD 相关心理健康。照护者选择治疗 AD 和控制瘙痒的频率最高，无论是为自己（分别为 76%和 75%）还是为孩子（分别为 75%和 61%）改善心理健康。成年患者对心理健康提供者提供的心理健康护理的满意度低于非心理健康提供者（ < 0.001）。有效管理 AD 是改善患者和照护者心理健康的首选方法，因为他们可能面临最大的心理健康影响。应在共同决策方法中考虑自我护理策略。
