LeBovidge Jennifer, Borok Jenna, Udkoff Jeremy, Yosipovitch Gil, Eichenfield Lawrence F
1Allergy Program, Division of Immunology, Boston Children's Hospital, Boston, Massachusetts, USA.
Division of Pediatric and Adolescent Dermatology, Rady Children's Hospital, San Diego, California, USA.
Semin Cutan Med Surg. 2017 Sep;36(3):131-136. doi: 10.12788/j.sder.2017.029.
Atopic dermatitis (AD) is a chronic skin condition affecting children and adults, with a significant negative impact on patient and caregiver quality of life (QOL). Although effective treatments for AD are available, outcomes are often limited by poor adherence to treatment plans. Effective patient and caregiver education about the disease and its management is a necessary and important component of AD care. Therapeutic patient education (TPE) is a patient-centered process that aims to transfer information and skills necessary to manage and cope with a disease from health care professionals to patients and caregivers. Shared decision making between the health care provider and the patient/caregiver is an integral component of the TPE process and recognizes the importance of both the medical provider's clinical expertise, as well as the patient/caregiver's preferences and experiences regarding their own medical condition and its treatment. TPE programs for patients with AD and their caregivers are typically provided by multidisciplinary teams and utilize a number of different methods and tools to facilitate the transfer of knowledge and skills through both individual care and group-based educational sessions. TPE has been demonstrated to improve outcomes such as AD disease severity, treatment adherence, QOL, and coping with itch. It is important to consider strategies to reduce barriers to cost-effective accessible AD education and treatment.
特应性皮炎（AD）是一种影响儿童和成人的慢性皮肤病，对患者及其照护者的生活质量（QOL）有重大负面影响。尽管有针对AD的有效治疗方法，但治疗效果往往因对治疗方案的依从性差而受到限制。对患者及其照护者进行有效的疾病及管理教育是AD护理的必要且重要组成部分。治疗性患者教育（TPE）是以患者为中心的过程，旨在将管理和应对疾病所需的信息和技能从医护人员传授给患者及其照护者。医护人员与患者/照护者之间的共同决策是TPE过程的一个组成部分，它认识到医疗提供者的临床专业知识以及患者/照护者对自身病情及其治疗的偏好和经验的重要性。针对AD患者及其照护者的TPE项目通常由多学科团队提供，并使用多种不同的方法和工具，通过个体护理和小组教育课程来促进知识和技能的传授。TPE已被证明能改善AD疾病严重程度、治疗依从性、生活质量以及应对瘙痒等结果。考虑采取策略减少经济高效的可及性AD教育和治疗的障碍很重要。
