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The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries".登记研究在神经创伤研究中的作用:将数据转化为增强患者护理的健康政策 述评:“中低收入国家国家登记处的神经创伤监测:数据字典的范围综述和比较分析”。
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Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries.中低收入国家国家登记处的神经创伤监测:数据字典的范围审查和比较分析。
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Global Neurotrauma Surveillance: Are National Databases Overrated? Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries".全球神经创伤监测:国家数据库是否被高估了?述评“中低收入国家国家登记处的神经创伤监测:数据字典的范围综述和比较分析”
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Neurotrauma clinicians' perspectives on the contextual challenges associated with traumatic brain injury follow up in low-income and middle-income countries: A reflexive thematic analysis.神经创伤临床医生对低收入和中等收入国家创伤性脑损伤随访相关背景挑战的看法:反思性主题分析。
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引用本文的文献

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Advancing Global Neurotrauma Surveillance Through National Registries: A Response to Recent Commentaries.通过国家登记处推进全球神经创伤监测:对近期评论的回应
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本文引用的文献

1
Global health diplomacy-reconstructing power and governance.全球卫生外交——重建权力与治理。
Lancet. 2022 Jun 4;399(10341):2156-2166. doi: 10.1016/S0140-6736(22)00583-9. Epub 2022 May 17.
2
Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries.中低收入国家国家登记处的神经创伤监测:数据字典的范围审查和比较分析。
Int J Health Policy Manag. 2022 Dec 6;11(11):2373-2380. doi: 10.34172/ijhpm.2021.167. Epub 2021 Dec 6.
3
Improved documentation following the implementation of a trauma registry: A means of sustainability for trauma registries in low- and middle-income countries.创伤登记处实施后文档质量的改善:为中低收入国家创伤登记处的可持续性提供了一种手段。
Injury. 2021 Sep;52(9):2672-2676. doi: 10.1016/j.injury.2021.07.030. Epub 2021 Jul 24.
4
Understanding the barriers and facilitators to trauma registry development in resource-constrained settings: A survey of trauma registry stewards and researchers.了解资源有限环境下创伤登记处发展的障碍和促进因素:对创伤登记处负责人和研究人员的调查。
Injury. 2021 Aug;52(8):2215-2224. doi: 10.1016/j.injury.2021.03.034. Epub 2021 Mar 30.
5
Global burden of injuries: it is time to understand the data in order to intervene.全球伤害负担:是时候了解这些数据以便进行干预了。
Inj Prev. 2020 Oct;26(Supp 1):i1-i2. doi: 10.1136/injuryprev-2020-043937.
6
Mapping global evidence on strategies and interventions in neurotrauma and road traffic collisions prevention: a scoping review.全球神经创伤和道路交通碰撞预防策略与干预措施证据图谱分析:范围综述。
Syst Rev. 2020 May 20;9(1):114. doi: 10.1186/s13643-020-01348-z.
7
Global neurosurgery: continued momentum at the 72nd World Health Assembly.全球神经外科学:第 72 届世界卫生大会的持续动力。
J Neurosurg. 2020 Jan 17;132(4):1256-1260. doi: 10.3171/2019.11.JNS191823. Print 2020 Apr 1.
8
Comprehensive Policy Recommendations for Head and Spine Injury Care in Low- and Middle-Income Countries.低收入和中等收入国家头部与脊柱损伤护理的综合政策建议
World Neurosurg. 2019 Dec;132:434-436. doi: 10.1016/j.wneu.2019.08.240. Epub 2019 Nov 19.
9
Global neurosurgery: the current capacity and deficit in the provision of essential neurosurgical care. Executive Summary of the Global Neurosurgery Initiative at the Program in Global Surgery and Social Change.全球神经外科:提供基本神经外科护理的当前能力与不足。全球外科与社会变革项目全球神经外科倡议执行摘要。
J Neurosurg. 2018 Apr 27;130(4):1055-1064. doi: 10.3171/2017.11.JNS171500. Print 2019 Apr 1.
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GBD 2010: understanding disease, injury, and risk.《2010年全球疾病负担研究:了解疾病、伤害及风险》
Lancet. 2012 Dec 15;380(9859):2053-4. doi: 10.1016/S0140-6736(12)62133-3.

登记研究在神经创伤研究中的作用:将数据转化为增强患者护理的健康政策 述评:“中低收入国家国家登记处的神经创伤监测:数据字典的范围综述和比较分析”。

The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries".

机构信息

Division of Neurosurgery, Department of Surgery, University of Cape Town, Cape Town, South Africa.

Neuroscience Institute, University of Cape Town, Cape Town, South Africa.

出版信息

Int J Health Policy Manag. 2023;12:7521. doi: 10.34172/ijhpm.2023.7521. Epub 2023 Feb 26.

DOI:10.34172/ijhpm.2023.7521
PMID:37579434
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10125055/
Abstract

The paucity of robust neurotrauma data is felt most in regions that experience a higher burden of traumatic brain injury (TBI). The scoping review done by Barthélemy et al provides insight into the current state of national registries in low- and middle-income countries (LMICs) while also exploring the tools required to standardize data collection. In this commentary, we reflect on the barriers to data collection (ie, creation and maintenance of a TBI registry) and explore how registries can aid both scientific output and preventative public awareness campaigns that may pave the way to improved health policy and social change that avert mortality and morbidity from TBI.

摘要

在创伤性脑损伤(TBI)负担较高的地区,缺乏强有力的神经创伤数据的问题最为明显。Barthélemy 等人进行的范围综述深入了解了低收入和中等收入国家(LMICs)的国家登记处的现状,同时还探讨了标准化数据收集所需的工具。在这篇评论中,我们反思了数据收集的障碍(即,TBI 登记处的创建和维护),并探讨了登记处如何帮助提高科学产出和预防性公众意识运动,这可能为改善健康政策和社会变革铺平道路,从而避免 TBI 导致的死亡率和发病率。