Koehlmoos Tracey Pérez, Lee Elizabeth, Wisdahl Jennifer, Donaldson Tom
Center for Health Services Research, Uniformed Services University of the Health Sciences, 4301 Jones Bridge Road, Bethesda, MD, 20814, USA.
Department of Pediatrics, Division of Pediatric Health Systems Research and Clinical Epidemiology, Uniformed Services University of the Health Sciences, 4301 Jones Bridge Road, Building 61 Room E225, Bethesda, MD, 20814, USA.
BMC Proc. 2023 Aug 15;17(Suppl 12):19. doi: 10.1186/s12919-023-00272-z.
It is estimated that up to 1 in 20 people in the United States are affected by fetal alcohol spectrum disorders (FASD), an array of cognitive, emotional, physical and social disorders caused by exposure to alcohol during prenatal development. Common diagnoses encompassed within FASD include mood and behavioral disorders, memory and central nervous system deficits, attention-deficit/hyperactivity disorder (ADHD), slow growth and low body weight. While this condition affects a broad range of individuals and families, it is of particular concern in the military community, where cultural factors including an increased prevalence of alcohol misuse pose a unique set of challenges. To shed light on these issues and provide an overview of the existing research, programs, and clinical practice guidelines surrounding FASD, the Uniformed Services University of the Health Sciences (USUHS), in conjunction with FASD United, hosted the Workshop on Fetal Alcohol Spectrum Disorders Prevention and Clinical Guidelines Research on 21 September 2022 in Washington, DC. More than 50 attendees from academia, healthcare, federal agencies, and consumer advocacy organizations gathered to share research findings, lived experiences, and strategies for improving FASD prevention, diagnosis, interventions, and support.The workshop began with a series of presentations on FASD risk factors and causes, strategies for diagnosis and interventions, and impacts and lived experiences. Individuals and families affected by FASD spoke about the ways FASD, its symptoms, and the social stigma associated with it influences their daily lives, experiences at school and work, and access to healthcare. Several speakers highlighted the work of non-profit organizations and advocacy groups in supporting families affected by FASD and other challenges faced by military families more broadly. The workshop closed with a discussion of federal agency perspectives highlighting initiatives aimed at advancing research and access to care for women and families at-risk and those currently affected by FASD.
据估计,美国每20人中就有1人受胎儿酒精谱系障碍(FASD)影响,这是一系列因孕期发育过程中接触酒精而导致的认知、情感、身体和社交方面的障碍。FASD涵盖的常见诊断包括情绪和行为障碍、记忆及中枢神经系统缺陷、注意力缺陷多动障碍(ADHD)、生长缓慢和体重过低。虽然这种情况影响着广泛的个人和家庭,但在军事社区中尤其令人担忧,因为包括酒精滥用患病率上升在内的文化因素带来了一系列独特的挑战。为了阐明这些问题,并概述围绕FASD的现有研究、项目和临床实践指南,美国卫生科学大学(USUHS)与FASD United联合,于2022年9月21日在华盛顿特区举办了胎儿酒精谱系障碍预防与临床指南研究研讨会。来自学术界、医疗保健、联邦机构和消费者权益倡导组织的50多名与会者齐聚一堂,分享研究结果、亲身经历以及改善FASD预防、诊断、干预和支持的策略。研讨会首先进行了一系列关于FASD风险因素和成因、诊断和干预策略以及影响和亲身经历的演讲。受FASD影响的个人和家庭讲述了FASD及其症状,以及与之相关的社会耻辱感如何影响他们的日常生活、在学校和工作中的经历以及获得医疗保健的机会。几位发言者强调了非营利组织和倡导团体在支持受FASD影响的家庭以及更广泛地支持军事家庭面临的其他挑战方面所做的工作。研讨会最后讨论了联邦机构的观点,重点介绍了旨在推进针对处于风险中的妇女和家庭以及目前受FASD影响的妇女和家庭的研究和医疗服务获取的倡议。