Department of Paediatrics, Ysbyty Ystrad Fawr, Ystrad Mynach, UK.
Sparkle, Newport, UK.
Child Care Health Dev. 2024 Jan;50(1):e13158. doi: 10.1111/cch.13158. Epub 2023 Aug 15.
Almost half of all children and young people with a disability or developmental difficulty (DDD) have complex disability and are likely to require multidisciplinary care. Care coordination (CC) aims to provide a single point of contact and a coordinated service, thereby improving care experiences, meeting unmet needs and empowering families. The impact of CC for children with DDD was evaluated.
Between May and August 2020, an in-depth evaluation of CC in Gwent, South Wales was conducted. Of 284 families who accessed CC, 38 were approached, as well as 177 health and social care professionals based at Serennu, Nevill Hall and Caerphilly Children's Centres. Nine families and 14 professionals completed semi-structured interviews. Interview transcripts were analysed using thematic analysis.
This evaluation found perceived improvements in families' abilities to navigate, organize and understand care and increased parental engagement. Professionals observed fewer missed appointments, and both professionals and families described CC as a source of holistic support, including practical advice regarding housing, finances and emotional support. Professionals commented on CC easing pressure on their service. Potential limitations included restricted staff capacity and the role not being defined clearly for families and professionals.
At a time of increased stress for families of children with DDD, and scarce resources to support them, care coordinators play a vital role in assisting families to engage with health services, while feeling supported and empowered. CC reduces the burden on professionals, while enhancing relationships with families.
将近一半的残疾或发育困难（DDD）儿童和年轻人都有复杂的残疾，可能需要多学科的护理。护理协调（CC）旨在提供一个单一的联系点和协调的服务，从而改善护理体验，满足未满足的需求并赋予家庭权力。评估了 CC 对 DDD 儿童的影响。
2020 年 5 月至 8 月，在南威尔士格温特对 CC 进行了深入评估。在 284 个接受 CC 的家庭中，有 38 个家庭被联系，还有 177 名健康和社会护理专业人员在 Serennu、Nevill Hall 和 Caerphilly 儿童中心工作。9 个家庭和 14 名专业人员完成了半结构化访谈。使用主题分析对访谈记录进行分析。
这项评估发现，家庭在导航、组织和理解护理方面的能力以及父母的参与度有所提高。专业人员发现预约的次数减少了，专业人员和家庭都将 CC 描述为整体支持的来源，包括有关住房、财务和情感支持的实用建议。专业人员表示 CC 减轻了他们服务的压力。潜在的限制因素包括员工能力有限，以及家庭和专业人员对该角色的定义不明确。
在残疾儿童的家庭压力增加且资源稀缺的情况下，护理协调员在帮助家庭与卫生服务机构建立联系的同时，为他们提供支持和赋权方面发挥了至关重要的作用。CC 减轻了专业人员的负担，同时加强了与家庭的关系。
