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一般数据保护条例在符合规定的数据向欧洲胸外科协会数据库贡献方面的意义。

The significance of general data protection regulation in the compliant data contribution to the European Society of Thoracic Surgeons database.

机构信息

Department of Thoracic Surgery, IEO, European Institute of Oncology IRCCS, Milan, Italy.

Department of Thoracic Surgery, Strasbourg University Hospital, Strasbourg, France.

出版信息

Eur J Cardiothorac Surg. 2023 Sep 7;64(3). doi: 10.1093/ejcts/ezad289.

Abstract

The General Data Protection Regulation (GDPR), enacted in the European Union in 2018, has significantly transformed the landscape of personal data management and protection. This article provides an overview of GDPR's impact, focusing on its applicability, fundamental principles and influence on data management practices, particularly within the European Society of Thoracic Surgeons (ESTS) database. GDPR's reach extends to all entities collecting and processing personal data of European Union residents, regardless of their location. It encompasses various data types, emphasizing meticulous handling and protection of identifiable information. Special categories of data, such as health and sensitive attributes, require even more stringent protection. The regulation sets legal, fair and transparent data processing principles, emphasizing accuracy, purpose limitation and data minimization. It also stresses accountability, leading to the appointment of Data Protection Officers and significant penalties for non-compliance. The ESTS database, designed to enhance thoracic surgical research and care, collects data on European procedures. It follows GDPR principles by pseudonymizing data, ensuring secure data transmission and providing clear instructions for data submission. The database contributes to research, policymaking and practice improvement in thoracic surgery by offering a comprehensive dataset for analysis. Here, we aim to shed light on the complexities of GDPR implementation and emphasize the need for comprehensive data management strategies to ensure compliance and enhance privacy protection with the contribution to the ESTS database. GDPR compliance comes with challenges, including potential human dignity and privacy rights violations. Data breaches can result in unauthorized disclosures, and non-compliance can lead to substantial fines and reputational damage. The implementation of GDPR encourages organizations to prioritize ethical data practices, security measures and transparent data handling. In conclusion, GDPR has revolutionized personal data protection by emphasizing accountability, transparency and individual rights. It has impacted organizations globally, promoting responsible data management practices. Adhering to GDPR ensures privacy protection, trust-building and overall enhancement of data management in today's data-driven environment.

摘要

《通用数据保护条例》(GDPR)于 2018 年在欧盟颁布实施,极大地改变了个人数据管理和保护的格局。本文概述了 GDPR 的影响,重点介绍其适用性、基本原则以及对数据管理实践的影响,特别是在欧洲胸外科协会(ESTS)数据库中的应用。GDPR 的适用范围涵盖了所有收集和处理欧盟居民个人数据的实体,无论其所在地如何。它包括各种数据类型,强调对可识别信息的细致处理和保护。特殊类别的数据,如健康和敏感属性,需要更严格的保护。该法规确立了合法、公平和透明的数据处理原则,强调准确性、目的限制和数据最小化。它还强调了问责制,要求任命数据保护官,并对违规行为处以巨额罚款。ESTS 数据库旨在加强胸外科研究和护理,收集欧洲手术数据。它遵循 GDPR 原则,对数据进行化名处理,确保数据传输安全,并为数据提交提供明确的指导。该数据库通过提供用于分析的综合数据集,为胸外科的研究、决策制定和实践改进做出了贡献。在这里,我们旨在阐明 GDPR 实施的复杂性,并强调需要制定全面的数据管理策略,以确保合规性并增强隐私保护,为 ESTS 数据库做出贡献。GDPR 合规性面临挑战,包括潜在的侵犯人类尊严和隐私权的风险。数据泄露可能导致未经授权的披露,而不合规可能导致巨额罚款和声誉受损。GDPR 的实施鼓励组织优先考虑道德数据实践、安全措施和透明的数据处理。总之,GDPR 通过强调问责制、透明度和个人权利,彻底改变了个人数据保护。它对全球组织产生了影响,促进了负责任的数据管理实践。遵守 GDPR 可确保隐私保护、建立信任以及在当今以数据为驱动的环境中全面提升数据管理水平。

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