Pôle Psychiatrie et Santé Mentale, Centre Hospitalier Victor Dupouy, Argenteuil, France.
INSERM U1153, Statistic and Epidemiologic Research Center Sorbonne Paris Cité, (CRESS), ECSTRRA Team, Université Paris Cité, Paris, France.
PLoS One. 2023 Aug 17;18(8):e0285617. doi: 10.1371/journal.pone.0285617. eCollection 2023.
The use of complementary therapies within oncology is a clinical issue, and their evaluation a methodological challenge. This paper reports the findings of a qualitative study exploring the lived experience of a French program of complementary therapies combining structured physical activity and MBSR among women with breast cancer.
This French exploratory qualitative study followed the five stages of the Inductive Process to analyze the Structure of lived Experience (IPSE) approach. Data was collected from February to April 2021 through semi structured interviews. Participants, purposively selected until data saturation. Inclusion criteria were: being an adult woman with breast cancer whatever the stage who had completed their treatment and were part of the program of complementary therapies.
29 participants were included. Data analysis produced a structure of experience based on two central axes: 1) the experience these women hoped for, with two principal expectations, that is to take care of their bodies and themselves, and to become actors in their own care; and 2) an experience of discovery, first of themselves and also in their relationship with the exterior, whether with others, or in society, and in the relationships with health-care providers.
Our results from this French study reinforce the data described in other western countries about the needs of women receiving care in oncology departments for breast cancer: they need to be informed of the existence of supportive care in cancer by the health-care professionals themselves, to be listened to, and to receive support care. A systematic work of reflexivity about this redundancy in our results and in the qualitative literature, led us to question what impeded the exploration of more complex aspects of the experience of this women-the inherently emotional and anxiety-inducing experience of cancer, especially anxiety about its recurrence and of death-and to suggest new research perspectives to overcome these methodological and theoretical obstacles.
在肿瘤学中使用补充疗法是一个临床问题，而对其进行评估则是一个方法学挑战。本文报告了一项定性研究的结果，该研究探讨了法国一项结合结构化身体活动和 MBSR 的补充疗法计划中，女性乳腺癌患者的生活体验。
这项法国探索性定性研究遵循归纳过程的五个阶段，分析了生活体验的结构（IPSE）方法。数据收集于 2021 年 2 月至 4 月期间，通过半结构化访谈进行。参与者是经过有目的选择的，直到达到数据饱和。纳入标准为：成年女性乳腺癌患者，无论分期如何，已完成治疗，且参加了补充疗法计划。
共纳入 29 名参与者。数据分析产生了一个基于两个中心轴的体验结构：1）这些女性所期望的体验，有两个主要期望，即照顾自己的身体和自己，并成为自己护理的参与者；2）一种发现的体验，首先是对自己的发现，也包括对外部世界的发现，无论是与他人还是与社会的关系，以及与医疗保健提供者的关系。
我们从这项法国研究中得到的结果，强化了其他西方国家关于接受乳腺癌肿瘤学部门护理的女性需求的描述：她们需要从医疗保健专业人员那里了解癌症支持性护理的存在，需要被倾听，并获得支持性护理。对我们的结果和定性文献中这种冗余性的系统反思性工作，使我们质疑是什么阻碍了对这些女性体验的更复杂方面的探索，即癌症固有的情感和焦虑诱发体验，特别是对复发和死亡的焦虑，并提出了克服这些方法和理论障碍的新研究视角。
