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Gene Therapy Knowledge and Attitude Among Healthcare Professionals: A Cross-Sectional Study.基因治疗知识和医疗保健专业人员的态度:一项横断面研究。
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Beliefs and Values About Gene Therapy and In-Utero Gene Editing in Patients with Hemophilia and Their Relatives.关于血友病患者及其亲属对基因治疗和子宫内基因编辑的信念和价值观。
Patient. 2020 Oct;13(5):633-642. doi: 10.1007/s40271-020-00442-7.
4
Parent perceptions, beliefs, and fears around genetic treatments and cures for children with Angelman syndrome.家长对治疗儿童天使综合征的基因治疗和疗法的看法、信念和担忧。
Am J Med Genet A. 2020 Jul;182(7):1716-1724. doi: 10.1002/ajmg.a.61631. Epub 2020 May 25.
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Role of genomics literacy in reducing the burden of common genetic diseases in Africa.基因组学素养在减轻非洲常见遗传疾病负担中的作用。
Mol Genet Genomic Med. 2019 Jul;7(7):e00776. doi: 10.1002/mgg3.776. Epub 2019 May 26.
6
Acceptability of Cell and Gene Therapy for Curing HIV Infection Among People Living with HIV in the Northwestern United States: A Qualitative Study.美国西北部艾滋病毒感染者对细胞和基因疗法治疗艾滋病毒感染的可接受性:一项定性研究
AIDS Res Hum Retroviruses. 2019 Jul;35(7):649-659. doi: 10.1089/AID.2019.0021. Epub 2019 May 21.
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Equitable Access to Gene Therapy: A Call to Action for the American Society of Gene and Cell Therapy.公平获得基因治疗:对美国基因与细胞治疗学会的行动呼吁。
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J Community Genet. 2019 Jan;10(1):73-84. doi: 10.1007/s12687-018-0363-7. Epub 2018 Mar 28.
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Pilot assessment of HIV gene therapy-hematopoietic stem cell clinical trial acceptability among minority patients and their advisors.少数族裔患者及其顾问对 HIV 基因治疗-造血干细胞临床试验可接受性的初步评估。
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实施基因治疗教育计划由 ASGCT 和穆希比利大学卫生与联合科学学院。

Implementation of a gene therapy education initiative by the ASGCT and Muhimbili University of Health and Allied Sciences.

机构信息

Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, IN 46202, USA.

American Society of Gene and Cell Therapy, Milwaukee, WI, USA.

出版信息

Mol Ther. 2023 Sep 6;31(9):2561-2565. doi: 10.1016/j.ymthe.2023.07.019. Epub 2023 Aug 17.

DOI:10.1016/j.ymthe.2023.07.019
PMID:37595584
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10492022/
Abstract

There has been rapid growth in gene therapy development with an expanding list of approved clinical products. Several therapies are particularly relevant to patients in low- and middle-income countries. Moreover, investing in research and manufacturing presents an opportunity for economic development. To increase awareness of gene therapy, the American Society of Gene and Cell Therapy partnered with the Muhimbili University of Health and Allied Sciences, Tanzania, to create a certificate-bearing course. The goal was to provide faculty teaching in graduate and medical schools with the tools needed to add gene therapy to the university curriculum. The first virtual course was held in October of 2022, and 45 individuals from 9 countries in Africa completed the training. The content was new to approximately two-thirds of participants, with the remaining third indicating that the course increased their knowledge base. The program was well received and will be adapted for other under-resourced regions.

摘要

基因治疗的发展迅速,获得批准的临床产品不断增多。有几种疗法特别适用于中低收入国家的患者。此外,投资于研究和制造为经济发展提供了机会。为了提高人们对基因治疗的认识,美国基因与细胞治疗学会与坦桑尼亚的穆希比利大学健康与联合科学学院合作,开设了一门带证书的课程。其目标是为教授研究生和医学院的教师提供必要的工具,以便将基因治疗纳入大学课程。第一门虚拟课程于 2022 年 10 月举行,来自非洲 9 个国家的 45 人完成了培训。大约三分之二的参与者对课程内容是全新的,其余三分之一的参与者表示,该课程增加了他们的知识库。该项目广受欢迎,并将适用于其他资源匮乏的地区。