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基于互联网的1型糖尿病青年成人招募与留存:横断面研究

Internet-Based Recruitment and Retention of Young Adults With Type 1 Diabetes: Cross-Sectional Study.

作者信息

Griggs Stephanie, Ash Garrett I, Pignatiello Grant, Papik AnnMarie, Huynh Johnathan, Leuchtag Mary, Hickman Ronald L

机构信息

Case Western Reserve University Frances Payne Bolton School of Nursing, Cleveland, OH, United States.

Yale School of Medicine, New Haven, CT, United States.

出版信息

JMIR Form Res. 2023 Aug 22;7:e46415. doi: 10.2196/46415.

Abstract

BACKGROUND

Multiple research strategies are required to recruit and engage a representative cohort of young adults in diabetes research. In this report, we describe an approach for internet-based recruitment for a repeated-measures descriptive study.

OBJECTIVE

The objective of this cross-sectional study was to determine whether internet-based recruitment through multiple social media platforms, a clinical research platform, and cooperation with community partnerships-College Diabetes Network and Beyond Type 1-would serve as an effective way to recruit a representative sample of young adults aged 18-25 years with type 1 diabetes (T1D).

METHODS

We conducted a repeated-measures descriptive study. We captured enrollment rates and participant characteristics acquired from each social media platform through survey data and Facebook analytics. This study was advertised via paid postings across a combination of different social media platforms (eg, Facebook, Instagram, Twitter, and Reddit). We used quarterly application postings, quarterly newsletters, and participation in the ResearchMatch registry to identify potentially eligible participants from February 3, 2021, to June 6, 2022.

RESULTS

ResearchMatch proved to be the most cost-effective strategy overall, yielding the highest gender and racial diversity compared to other internet platforms (eg, Facebook, Instagram, Twitter, and Reddit), application postings (eg, Beyond Type 1), and newsletters (eg, College Diabetes Network and a local area college). However, we propose that the combination of these approaches yielded a larger, more diverse sample compared to any individual strategy. Our recruitment cost was US $16.69 per eligible participant, with a 1.27% conversion rate and a 30% eligibility rate.

CONCLUSIONS

Recruiting young adults with T1D across multiple internet-based platforms was an effective strategy to yield a moderately diverse sample. Leveraging various recruitment strategies is necessary to produce a representative sample of young adults with T1D. As the internet becomes a larger forum for study recruitment, participants from underrepresented backgrounds may continue engaging in research through advertisements on the internet and other internet-based recruitment platforms.

摘要

背景

需要多种研究策略来招募和吸引具有代表性的年轻成年人参与糖尿病研究。在本报告中,我们描述了一种用于重复测量描述性研究的基于互联网的招募方法。

目的

这项横断面研究的目的是确定通过多个社交媒体平台、一个临床研究平台以及与社区合作伙伴(大学糖尿病网络和1型糖尿病超越组织)合作进行基于互联网的招募,是否能作为招募18至25岁1型糖尿病(T1D)年轻成年人代表性样本的有效方式。

方法

我们进行了一项重复测量描述性研究。通过调查数据和Facebook分析,我们获取了从每个社交媒体平台招募的参与率和参与者特征。本研究通过在不同社交媒体平台(如Facebook、Instagram、Twitter和Reddit)组合上的付费帖子进行宣传。我们利用季度申请帖子、季度时事通讯以及参与ResearchMatch注册库,从2021年2月3日至2022年6月6日识别潜在符合条件的参与者。

结果

总体而言,ResearchMatch被证明是最具成本效益的策略,与其他互联网平台(如Facebook、Instagram、Twitter和Reddit)、申请帖子(如1型糖尿病超越组织)和时事通讯(如大学糖尿病网络和当地一所学院)相比,产生了最高的性别和种族多样性。然而,我们提出,与任何单一策略相比,这些方法的组合产生了更大、更多样化的样本。我们的招募成本为每位符合条件的参与者16.69美元,转化率为1.27%,符合条件率为30%。

结论

通过多个基于互联网的平台招募患有T1D的年轻成年人是获得适度多样化样本的有效策略。利用各种招募策略对于获得患有T1D的年轻成年人的代表性样本是必要的。随着互联网成为研究招募的更大平台,来自代表性不足背景的参与者可能会继续通过互联网广告和其他基于互联网的招募平台参与研究。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/803e/10481220/1e862325c931/formative_v7i1e46415_fig1.jpg

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