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为方便远程学习和患者赋权而开设的在线青光眼教育课程。

An online glaucoma educational course for patients to facilitate remote learning and patient empowerment.

机构信息

Glaucoma, Moorfields Eye Hospital City Road Campus, London, UK

King's College London, London, UK.

出版信息

BMJ Health Care Inform. 2023 Aug;30(1). doi: 10.1136/bmjhci-2023-100748.

Abstract

In both face-to-face and teleophthalmology glaucoma clinics, there are significant time constraints and limited resources available to educate the patient and their carers regarding the glaucoma condition. Glaucoma patients are often not satisfied with the content and amount of information they receive and have demonstrated a substantial lack of knowledge regarding their condition. Innovative educational tools that facilitate accessible digital remote patient education can be a powerful adjunct to empower patients in becoming healthcare partners.We describe the development of a free, comprehensive, multimodal online glaucoma patient education course for adults with glaucoma, their family and friends and carers, with the aim of providing a readable resource to aid remote learning and understanding of the condition.The working group for the development of the course comprised of consultants, medical practitioners and education specialists and expert patients. Given the specialised nature of ophthalmology and glaucoma, certain aspects can be difficult to conceptualise, and, therefore, clear and adequate explanations of concepts are provided in the course using diagrams, flow charts, medical illustrations, images, videos, written text, analogies and quizzes.The course is available in a short and long version to suit different learning needs which take approximately 2 hours and 10 hours to complete respectively. The contents list allows course takers to find sections relevant to them and it can be taken anywhere, as long as there is Internet access.We invite you to share this resource with your patients and their families, friends and carers.

摘要

在面对面和远程眼科青光眼诊所中,都存在着显著的时间限制和有限的资源,这限制了向患者及其照顾者传授青光眼知识的能力。青光眼患者通常对他们所获得的信息的内容和数量不满意,并且对自己的病情知之甚少。创新的教育工具可以方便地进行远程患者教育,从而增强患者成为医疗保健合作伙伴的能力。我们开发了一个免费的、综合性的、多模式的在线青光眼患者教育课程,适用于青光眼患者、他们的家人、朋友和照顾者,旨在提供一个可读的资源,以帮助远程学习和理解病情。该课程的开发工作组成员包括顾问、医疗从业者和教育专家以及患者代表。鉴于眼科和青光眼的专业性,某些方面可能难以理解,因此在课程中使用了图表、流程图、医学插图、图像、视频、文字、类比和测验,对概念进行了清晰和充分的解释。该课程有短版本和长版本,以满足不同的学习需求,分别需要大约 2 小时和 10 小时完成。内容列表允许学习者找到与他们相关的部分,并且只要有互联网连接,就可以在任何地方学习。我们邀请您与您的患者及其家人、朋友和照顾者分享此资源。

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本文引用的文献

1
The current use of glaucoma virtual clinics in Europe.欧洲当前青光眼虚拟诊所的使用情况。
Eye (Lond). 2023 May;37(7):1350-1356. doi: 10.1038/s41433-022-02111-5. Epub 2022 Jun 11.
2
Readability of Online Patient Education Materials for Glaucoma.青光眼在线患者教育资料的可读性。
J Glaucoma. 2022 Jun 1;31(6):438-442. doi: 10.1097/IJG.0000000000002012. Epub 2022 Mar 11.
3
Glaucoma Health Coaching: A Survey of Eye Drop Instillation Education.青光眼健康指导:滴眼液滴注教育调查
J Glaucoma. 2022 May 1;31(5):351-355. doi: 10.1097/IJG.0000000000001933. Epub 2021 Sep 2.
5
Health Literacy and Success with Glaucoma Drop Administration.健康素养与青光眼滴眼剂使用的成功率
Ophthalmol Glaucoma. 2022 Jan-Feb;5(1):26-31. doi: 10.1016/j.ogla.2021.05.004. Epub 2021 May 28.
9
Measuring Disability in Glaucoma.测量青光眼的残疾程度。
J Glaucoma. 2018 Nov;27(11):939-949. doi: 10.1097/IJG.0000000000001068.

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