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在阿巴拉契亚人群的脊柱手术中使用“患者生成指数”

Using the "Patient Generated Index" in Spine Surgery in an Appalachian Population.

作者信息

Dekeseredy Patricia, Marsh Robert, Sedney Cara L

机构信息

WVU Medicine, One Medical Center Drive, PO Box 9183, Suite 4300 Health Science Center, Morgantown, West Virginia.

West Virginia University Department of Neurosurgery.

出版信息

W V Med J. 2019;115(3):21-25. doi: 10.21885/wvmj.2019.10.

DOI:10.21885/wvmj.2019.10
PMID:37637865
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10457017/
Abstract

In most health care fields, outcomes are becoming increasingly scrutinized and may play a role in "pay for performance;" therefore, selecting the most appropriate outcomes measures for the populations being studied or treated has evolved into a key aspect of outcomes monitoring. One way to assess patient goals is to administer a "patient generated index" (PGI). The philosophical underpinning of the PGI is that the person living the life is the best judge of the quality of that life. The PGI has been utilized in low back pain, as well as in adult spinal deformity surgery, however, it has not been previously utilized in an Appalachian population. The PGI was administered by means of self-report to 80 new patients with back pain who presented for assessment in the neurosurgery clinic. Participants completed an acceptability survey and written comments as well as compliance were analyzed. Findings indicate that the PGI in its earliest form did not meet acceptable levels for use in this Appalachian subspecialist clinic setting. This study contributes to the growing body of knowledge on patient reported outcomes and more specifically, the importance of utilizing patient generated responses to map improvements in quality of life for patients over time.

摘要

在大多数医疗保健领域,结果受到越来越多的审查,并且可能在“按绩效付费”中发挥作用;因此,为所研究或治疗的人群选择最合适的结果指标已成为结果监测的一个关键方面。评估患者目标的一种方法是采用“患者生成指数”(PGI)。PGI的理论基础是,过着这种生活的人最能评判这种生活的质量。PGI已被用于腰痛以及成人脊柱畸形手术,但此前尚未在阿巴拉契亚人群中使用。通过自我报告的方式,对80名到神经外科诊所就诊以进行评估的新发背痛患者实施了PGI。对参与者完成的可接受性调查、书面评论以及依从性进行了分析。研究结果表明,最早形式的PGI在这个阿巴拉契亚专科诊所环境中的使用未达到可接受水平。本研究为关于患者报告结果的知识体系不断扩充做出了贡献,更具体地说,为利用患者生成的反应来描绘患者生活质量随时间的改善情况的重要性做出了贡献。

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引用本文的文献

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Patient-Reported Outcomes Measures in Spine Surgery.脊柱手术中患者报告的结局指标
Curr Rev Musculoskelet Med. 2025 May 17. doi: 10.1007/s12178-025-09981-8.

本文引用的文献

1
Importance of patient-reported individualized goals when assessing outcomes for adult spinal deformity (ASD): initial experience with a Patient Generated Index (PGI).评估成人脊柱畸形(ASD)结局时患者报告的个体化目标的重要性:患者生成指数(PGI)的初步经验。
Spine J. 2017 Oct;17(10):1397-1405. doi: 10.1016/j.spinee.2017.04.013. Epub 2017 Apr 13.
2
The current trend of administering a patient-generated index in the oncological setting: a systematic review.肿瘤学环境中应用患者生成指数的当前趋势:一项系统综述。
Oncol Rev. 2014 Jun 30;8(1):245. doi: 10.4081/oncol.2014.245. eCollection 2014 Mar 17.
3
Individualized quality of life in patients with low back pain: reliability and validity of the Patient Generated Index.
患者报告的低腰背疼痛生活质量指数:信度和效度。
J Rehabil Med. 2014 Sep;46(8):781-7. doi: 10.2340/16501977-1826.
4
Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.研究电子数据采集(REDCap)——一种用于提供转化研究信息学支持的元数据驱动方法和工作流程。
J Biomed Inform. 2009 Apr;42(2):377-81. doi: 10.1016/j.jbi.2008.08.010. Epub 2008 Sep 30.
5
Twelve years' experience with the Patient Generated Index (PGI) of quality of life: a graded structured review.患者生成的生活质量指数(PGI)的十二年经验:分级结构化综述。
Qual Life Res. 2007 May;16(4):705-15. doi: 10.1007/s11136-006-9152-6. Epub 2007 Feb 1.
6
Patient centred assessment of quality of life for patients with four common conditions.以患者为中心,对患有四种常见疾病的患者的生活质量进行评估。
Qual Health Care. 1999 Mar;8(1):22-9. doi: 10.1136/qshc.8.1.22.
7
A new approach to the measurement of quality of life. The Patient-Generated Index.一种衡量生活质量的新方法。患者生成指数。
Med Care. 1994 Nov;32(11):1109-26. doi: 10.1097/00005650-199411000-00004.