Jourde-Chiche Noémie, Béchade Clémence, Couchoud Cécile
Aix-Marseille Université, C2VN, INSERM, INRAE, AP-HM Centre de Néphrologie et Transplantation Rénale, Marseille, France
Coordination régionale REIN Basse-Normandie, Service de néphrologie, Centre hospitalo-universitaire de Caen, Caen, France
Nephrol Ther. 2023 Aug 28;18(S2):70-75. doi: 10.1016/S1769-7255(22)00572-7.
On the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue its role in research, the following key messages were retained. The growing number of publications, dissertations, theses and teams involved shows that the REIN registry has attained its objective of being a shared research infrastructure, in the field of epidemiology as well as in public health, health economics or medical data processing. REIN is a valuable tool for the study of specific kidney diseases, particularly for epidemiological data pertaining to rare diseases that may lead to stage 5 of a chronic kidney disease. The linkage with the data from the National Healthcare Data System enables integrating and analysing the medical treatments received by patients, before the initiation of the replacement therapy and towards the end, as well as the details of the hospital stays.
在法国肾脏流行病学和信息网络（REIN）成立20周年之际，对法国国家终末期肾病登记处的贡献进行了一项总结工作。关于其在研究中的作用，保留了以下关键信息。越来越多的出版物、学位论文、论文以及参与的团队表明，REIN登记处在流行病学、公共卫生、卫生经济学或医学数据处理领域已实现其成为共享研究基础设施的目标。REIN是研究特定肾脏疾病的宝贵工具，特别是对于与可能导致慢性肾病5期的罕见疾病相关的流行病学数据。与国家医疗数据系统的数据相联系，能够整合和分析患者在开始替代治疗之前、接近治疗末期所接受的医疗治疗以及住院详情。
