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本文引用的文献

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Imagining Neurodivergent Futures from the Belly of the Identity Machine: Neurodiversity, Biosociality, and Strategic Essentialism.从身份机器的核心想象神经差异的未来:神经多样性、生物社会性与策略性本质主义
Autism Adulthood. 2023 Sep 1;5(3):225-235. doi: 10.1089/aut.2021.0075. Epub 2023 Aug 30.
2
Intersectionality Within Critical Autism Studies: A Narrative Review.批判性自闭症研究中的交叉性:一项叙事综述。
Autism Adulthood. 2022 Dec 1;4(4):281-289. doi: 10.1089/aut.2021.0014. Epub 2022 Dec 13.
3
The Scholarly Neglect of Black Autistic Adults in Autism Research.自闭症研究中对成年黑人自闭症患者的学术忽视。
Autism Adulthood. 2022 Dec 1;4(4):271-280. doi: 10.1089/aut.2021.0086. Epub 2022 Dec 13.
4
A Theory of Mine: My Perspective on Perspective-Taking.我的一个理论:我对换位思考的看法。
Autism Adulthood. 2022 Dec 1;4(4):265-267. doi: 10.1089/aut.2022.0002. Epub 2022 Dec 13.
5
Antiracism and Community-Based Participatory Research: Synergies, Challenges, and Opportunities.反种族主义与基于社区的参与式研究:协同作用、挑战与机遇。
Am J Public Health. 2023 Jan;113(1):70-78. doi: 10.2105/AJPH.2022.307114.
6
Presidential Address, 2022-Dismantling Systemic Barriers: Re-Envisioning Equity and Inclusion.
Intellect Dev Disabil. 2022 Dec 1;60(6):520-529. doi: 10.1352/1934-9556-60.6.520.
7
Special Issue Introduction: Addressing Healthcare Inequities in Intellectual Disability and Developmental Disabilities.特刊引言:解决智力残疾和发育障碍中的医疗保健不平等问题
Intellect Dev Disabil. 2022 Dec 1;60(6):449-452. doi: 10.1352/1934-9556-60.6.449.
8
Lessons Learned From Research Collaboration Among People With and Without Developmental Disabilities.残障人士与非残障人士合作研究的经验教训。
Intellect Dev Disabil. 2022 Oct 1;60(5):405-415. doi: 10.1352/1934-9556-60.5.405.
9
Health Equity Tourism: Ravaging the Justice Landscape.健康公平旅游:破坏正义景观。
J Med Syst. 2022 Feb 12;46(3):17. doi: 10.1007/s10916-022-01803-5.
10
Making Research Possible: Barriers and Solutions For Those With ASD and ID.让研究成为可能:自闭症谱系障碍及智力障碍患者面临的障碍与解决办法
J Autism Dev Disord. 2022 Oct;52(10):4646-4650. doi: 10.1007/s10803-021-05320-1. Epub 2021 Oct 30.

智力和发育障碍研究的未来工作。

The Work Ahead for Intellectual and Developmental Disabilities Research.

机构信息

Sara T. Kover, University of Washington.

Leonard Abbeduto, University of California, Davis.

出版信息

Am J Intellect Dev Disabil. 2023 Sep 1;128(5):388-392. doi: 10.1352/1944-7558-128.5.388.

DOI:10.1352/1944-7558-128.5.388
PMID:37644864
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10773982/
Abstract

In "Toward Equity in Research on Intellectual and Developmental Disabilities," we sought to make entrenched assumptions and practices of intellectual and developmental disabilities research visible by explicitly describing the status quo in terms of models of disability, participant and researcher identities, research priorities, and biases in measurement and treatment approaches. We then curated individual- and systems-level actions drawn from disability justice and broader social justice lenses to offer a way forward. We focused on three major areas (i.e., intersectionality and person-centered approaches, participatory research, and interprofessional collaboration), depicting influences, methods, and actions in a framework of disability, identity, and culture. In this Author Response, we address five commentaries that critique and extend that synthesis.

摘要

在《迈向智力和发育障碍研究中的公平》一文中,我们试图通过明确描述残疾模型、参与者和研究人员身份、研究重点以及测量和治疗方法中的偏见,使智力和发育障碍研究中根深蒂固的假设和实践变得可见。然后,我们从残疾正义和更广泛的社会正义视角中精心挑选了个人和系统层面的行动,为前进提供了一种方式。我们专注于三个主要领域(即交叉性和以人为中心的方法、参与式研究和跨专业合作),在残疾、身份和文化框架中描述影响、方法和行动。在这篇作者回复中,我们将讨论对该综述进行批评和扩展的五篇评论。