Julianna H. Kim, University of Maryland.
Oscar E. Hughes, Boston University.
Intellect Dev Disabil. 2022 Oct 1;60(5):405-415. doi: 10.1352/1934-9556-60.5.405.
Research related to the developmental disability (DD) community should include collaboration with individuals with DD. Unfortunately, people with DD are infrequently involved in research projects in meaningful ways, and there is little guidance about how to collaborate equitably with researchers with DD. The purpose of this article is to share lessons learned from a collaborative research study among researchers with and without DD using both qualitative and quantitative methods to develop and examine the effectiveness of a civic engagement intervention for transition-aged youth with disabilities. It includes how our research team compensated researchers with DD, clarified team member roles, leveraged the expertise of researchers with DD in using both qualitative and quantitative methods, and integrated technology throughout the research process.
研究与发育障碍（DD）群体相关的内容时，应当包含与 DD 患者的合作。遗憾的是，DD 患者很少能够以有意义的方式参与到研究项目中，且几乎没有如何与 DD 患者进行公平合作的指导。本文旨在分享经验，供研究人员参考，内容涉及有无 DD 的研究人员合作开展的一项研究，研究采用了定性和定量方法，旨在为残疾青年制定并检验一项参与公民事务的干预措施的有效性。其中包括我们的研究团队如何为 DD 患者的研究人员提供补偿、明确团队成员的角色、利用 DD 患者在使用定性和定量方法方面的专业知识，以及在整个研究过程中整合技术。
