Zhang Dan, Chang Tiantian, Zhao Kaijian, Wei He, Feng Shuang, Li Xiaofei
School of Medicine, HuangHuai University, Zhumadian, Henan, PR China; Transplantation and Hepatobiliary Department, the First Affiliated Hospital of China Medical University, Shenyang, Liaoning, PR China.
Transplantation and Hepatobiliary Department, the First Affiliated Hospital of China Medical University, Shenyang, Liaoning, PR China; Nursing department, China-Japan Friendship Hospital, Beijing, PR China.
J Pediatr Nurs. 2023 Nov-Dec;73:72-77. doi: 10.1016/j.pedn.2023.08.011. Epub 2023 Aug 28.
Caregivers of children who have had liver transplantation often experience chronic care stress. Previous studies have focused on caregivers' negative feelings (e.g., caregiver burden), but few studies have focused on caregivers' positive feelings (e.g., sense of coherence) and caregiver ability.
The study purpose was to investigate the status of the burden of caregivers of children with liver transplantation, and to explore the mediating role of sense of coherence between caregiver ability and caregiver burden.
There were 461 questionnaires collected from a tertiary-level hospital from caregivers of children who had liver transplantation from April to June 2022. Demographic data, Family Caregiver Task Inventory, Sense of Coherence Scale-13, and Zarit Burden Interview were used. The STROBE checklist was monitored.
The average caregiver burden score was 32.19 ± 16.71. The distribution of caregiver burden levels was mild (42.52%), none (26.25%), moderate (24.95%), and severe (6.29%). Caregiver ability score was negatively correlated with caregiver burden score; however, sense of coherence score was negatively correlated with caregiver burden score. Caregiver ability partially mediated caregiver burden through sense of coherence (38.51%).
The caregiver burden level was not heavy in general. Both positive and negative feelings were present in caregivers. Caregiver ability also reduced the caregiver burden through sense of coherence.
接受肝移植儿童的照料者常常经历长期护理压力。以往研究主要关注照料者的负面感受（如照料负担），但很少有研究关注照料者的积极感受（如连贯感）和照料者能力。
本研究旨在调查肝移植儿童照料者的负担状况，并探讨连贯感在照料者能力与照料者负担之间的中介作用。
2022年4月至6月，从一家三级医院收集了461份接受肝移植儿童照料者的问卷。使用了人口统计学数据、家庭照料者任务量表、连贯感量表-13和扎里特负担访谈量表。对照了STROBE清单。
照料者负担平均得分为32.19±16.71。照料者负担水平分布为轻度（42.52%）、无（26.25%）、中度（24.95%）和重度（6.29%）。照料者能力得分与照料者负担得分呈负相关；然而，连贯感得分与照料者负担得分呈负相关。照料者能力通过连贯感部分中介了照料者负担（38.51%）。
总体上照料者负担水平不重。照料者同时存在积极和消极感受。照料者能力也通过连贯感减轻了照料者负担。
