Li ZhiRu, Lu FangYan, Dong Li, Zheng Li, Wu JingYun, Wu SiYuan, Wang Yan, Wang HuaFen
Zhejiang University School of Medicine, Hangzhou, People's Republic of China.
Department of Nursing, the First Affiliated Hospital, Zhejiang University School of Medicine, Zhejiang, People's Republic of China.
Eur J Psychotraumatol. 2025 Dec;16(1):2447184. doi: 10.1080/20008066.2024.2447184. Epub 2025 Jan 9.
To explore the experience of post-traumatic growth among parents of children with biliary atresia undergoing living-related liver transplantation.: Participants were recruited within 2 weeks of their child's transplant surgery using purposive sampling. Transcripts were analyzed using Colaizzi's descriptive analysis framework, with collaborative analysis conducted using NVivo 12 software and a post-traumatic growth model. Five themes were identified: (a) experiencing a devastating blow, (b) cognitive reconstruction under overwhelming pain, (c) an arduous journey of decision-making, (d) rebirth in adversity and (e) post-traumatic growth. Parents undergo significant post-traumatic responses to their child's diagnosis of biliary atresia and liver transplantation, marking two major traumatic events. During the diagnostic stage, parents experience intense post-traumatic reactions characterized by emotional fluctuations and intrusive thoughts. The early treatment phase represents a crucial time for parents to transition from denial of reality' to
accepting diseases'. The process of liver transplantation is also a significant traumatic event, accompanied by a final hope. Parents in the stable period after liver transplantation feel fortunate, hopeful and grateful, and their post-traumatic growth manifests gradually. Parents' experience of post-traumatic growth involves dynamic changes. Tailored intervention strategies should be developed for different stages to enhance their post-traumatic growth and psychological well-being. During the early treatment stage, mental health professionals could provide cognitive interventions to encourage parents to express their negative emotions and guide them to develop positive cognition toward traumatic events. The coping strategies and increasing personal growth are also important. In the postoperative stage, mental health professionals need to fully evaluate the coping styles of parents, and encourage them to establish effective internal coping strategies, while classic gratitude interventions could be given during the post-traumatic growth stage. Future research could involve a longitudinal qualitative study to explore parents' post-traumatic growth experiences at different stages of their children's transplantation process.
探讨接受亲属活体肝移植的胆道闭锁患儿家长的创伤后成长经历。:采用目的抽样法,在患儿移植手术后2周内招募参与者。使用科莱齐的描述性分析框架对访谈记录进行分析,并使用NVivo 12软件和创伤后成长模型进行协同分析。确定了五个主题:(a)遭受毁灭性打击;(b)在巨大痛苦下进行认知重建;(c)艰难的决策过程;(d)在逆境中重生;(e)创伤后成长。家长对孩子被诊断为胆道闭锁及肝移植会经历重大的创伤后反应,这是两个主要的创伤性事件。在诊断阶段,家长经历强烈的创伤后反应,其特点是情绪波动和侵入性思维。早期治疗阶段是家长从“否认现实”转变为“接受疾病”的关键时期。肝移植过程也是一个重大的创伤性事件,伴随着最后的希望。肝移植术后稳定期的家长感到幸运、充满希望和感激,他们的创伤后成长逐渐显现。家长的创伤后成长经历涉及动态变化。应针对不同阶段制定个性化的干预策略,以促进他们的创伤后成长和心理健康。在早期治疗阶段,心理健康专业人员可以提供认知干预,鼓励家长表达负面情绪,并引导他们对创伤性事件形成积极认知。应对策略和个人成长的增加也很重要。在术后阶段,心理健康专业人员需要全面评估家长的应对方式,并鼓励他们建立有效的内部应对策略,而在创伤后成长阶段可以进行经典的感恩干预。未来的研究可以包括纵向定性研究,以探索家长在孩子移植过程不同阶段的创伤后成长经历。