School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada.
Gerontologist. 2024 Apr 1;64(4). doi: 10.1093/geront/gnad120.
Past research about family involvement in long-term care (LTC) homes mainly focuses on family members' involvement with their own relative, interactions with staff, and collective activities such as Family Councils. Our research provides novel insights into family member's involvement in the care of residents who are not their relatives, an area that has not previously been explored.
This critical ethnographic study examined ways that family members negotiate and navigate their roles within LTC homes. Data collection and analysis took place at 3 LTC homes in British Columbia, Canada, between 2014 and 2018. Data were collected through participant observation and semistructured interviews. Eleven family member participants shared experiences of caring for residents who were not their relatives.
The umbrella theme was "filling in," which takes place in a care environment that is understaffed and underresourced. The subthemes reflect the various ways that families are "filling in": responding to resident's needs, supporting staff to respond to resident needs, and filling in for residents' families.
Caring for residents who are not their relatives is facet of family involvement in LTC homes that has not been previously explored. Many family members have expertise in providing person-centered care and they extend this expertise to residents who are not their relatives. Policies and legislation are needed to formalize family involvement in caring for nonrelative residents as it is a component of quality of care for all residents.
以往关于家庭参与长期护理院(LTC)的研究主要集中在家庭成员对自己亲属的参与、与工作人员的互动以及家庭委员会等集体活动。我们的研究提供了对家庭成员参与照顾非亲属居民的新视角,这是一个以前未被探索过的领域。
本批判性民族志研究探讨了家庭成员在 LTC 院内协商和确定其角色的方式。数据收集和分析于 2014 年至 2018 年在加拿大不列颠哥伦比亚省的 3 家 LTC 院进行。数据通过参与观察和半结构化访谈收集。11 名家庭成员参与者分享了照顾非亲属居民的经验。
主题是“填补空缺”,这发生在人员配备和资源不足的护理环境中。子主题反映了家庭“填补空缺”的各种方式:回应居民的需求、支持工作人员回应居民的需求以及为居民的家属“填补空缺”。
照顾非亲属居民是家庭参与 LTC 院的一个方面,以前没有被探索过。许多家庭成员在提供以患者为中心的护理方面具有专业知识,他们将这种专业知识扩展到非亲属居民身上。需要制定政策和法规,将家庭参与照顾非亲属居民正式化,因为这是所有居民护理质量的组成部分。