Department of Family and Community Medicine, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, PA, United States.
Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, PA, United States.
Fam Pract. 2024 Jun 12;41(3):378-381. doi: 10.1093/fampra/cmad075.
In the United States, individuals with intellectual and developmental disabilities (IDD) consistently experience health disparities. One factor is limited access to quality healthcare services equipped to meet the needs of those with IDD, particularly as they transition to adulthood. The purpose of this work is to describe the development and implementation of Jefferson's Continuing Care Program (JCCP), which was designed to address this care gap. We share how the idea, logistics, and support for the clinic were developed; how JCCP was designed to be uniquely accessible both via physical space and clinic flow; and how those challenges encountered have been crucial for fine-tuning optimal patient care. Since its inception in 2019, JCCP has made large strides towards educating the next generation of medical providers to care for patients with IDD. Looking to the future, JCCP plans to broaden its impact by serving more patients, continuing our advocacy and education work, and continuing to adapt to the needs of our community.
在美国,智力和发育障碍 (IDD) 患者的健康状况一直存在差异。一个因素是他们获得优质医疗保健服务的机会有限,这些服务需要满足 IDD 患者的需求,尤其是在他们向成年过渡时。这项工作的目的是描述杰斐逊持续护理计划 (JCCP) 的制定和实施情况,该计划旨在解决这一护理差距。我们分享了诊所的理念、后勤和支持是如何发展的;JCCP 是如何通过物理空间和诊所流程的独特设计来实现无障碍的;以及遇到的这些挑战对优化患者护理至关重要。自 2019 年成立以来,JCCP 在教育下一代医疗服务提供者方面为照顾 IDD 患者取得了重大进展。展望未来,JCCP 计划通过为更多患者提供服务、继续我们的宣传和教育工作以及继续适应我们社区的需求来扩大其影响。