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揭示智力和发育障碍成年人中的医疗保健不平等现象。

Uncovering health care inequalities among adults with intellectual and developmental disabilities.

作者信息

Ward Rolanda L, Nichols Amanda D, Freedman Ruth I

机构信息

Department of Sociology, Anthropology, Social Work, and Criminal Justice, SUNY Fredonia, NY 14063, USA.

出版信息

Health Soc Work. 2010 Nov;35(4):280-90. doi: 10.1093/hsw/35.4.280.

DOI:10.1093/hsw/35.4.280
PMID:21171535
Abstract

Even as attention is drawn to the increasing number of individuals who experience health inequalities in the United States, little is known about the health inequalities experienced by individuals with intellectual and developmental disabilities. Current disability research mainly focuses on physical disabilities. This article discusses the health disparities experienced by individuals with intellectual and developmental disabilities.The authors conducted focus groups with parents/guardians, self-advocates, and community support professionals and key informant interviews with health care professionals to assess the needs of this less frequently documented population. Results from this study indicate that individuals with intellectual and developmental disabilities face health care disparities and inequities in four areas: access, knowledge, communication, and quality.

摘要

尽管人们越来越关注美国健康不平等现象日益增多的个体,但对于智力和发育障碍个体所经历的健康不平等却知之甚少。当前的残疾研究主要集中在身体残疾方面。本文探讨了智力和发育障碍个体所经历的健康差异。作者与家长/监护人、自我倡导者以及社区支持专业人员进行了焦点小组讨论,并与医疗保健专业人员进行了关键信息访谈,以评估这一较少被记录的人群的需求。这项研究的结果表明,智力和发育障碍个体在四个方面面临医疗保健差异和不公平:可及性、知识、沟通和质量。

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