从癌症患者家属的角度出发，翻译并心理计量评估“良好死亡清单-短式”的波斯语版本。

Translation and psychometric evaluation of the Persian version of "good death inventory- short Form" from the perspective of family-members of cancer patients.

机构信息

Student Research Committee, Baqiyatallah University of Medical Sciences, Tehran, Iran.

Behavioral Sciences Research Center, Life Style Institute, Baqiyatallah University of Medical Sciences, Tehran, Iran.

出版信息

BMC Psychol. 2023 Sep 2;11(1):261. doi: 10.1186/s40359-023-01305-0.

DOI:10.1186/s40359-023-01305-0

PMID:37660187

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10475178/

Abstract

INTRODUCTION

Achieving good death is among the objectives of palliative care in patients with cancer. There should be an instrument for evaluating the quality of palliative care provided by family members at the end of life. This study was done to assess the psychometric properties of good death inventory- short form according to the perspective of family of patients with cancer.

METHOD

This methodological study was done in 2022 at two hospitals in Tehran. The translation was done via forward-backward method. Face validity was examined through cognitive interviewing with 10 family members. The content validation, were used by assessment the opinions of 10 palliative care specialists. The construct validity was explored through exploratory factor analysis and examination of convergent validation with care evaluation scale 2.0, as well as inspection of correlation by answering two general questions of satisfaction with treatment and end of life quality of life. The scale's reliability, internal consistency was calculated using Cronbach's alpha coefficient and stability via test-retest.

RESULTS

Overall, 204 family members of patients with cancer were included. In the exploratory factor analysis, three factors of peace, hope, and value as well as quality of care were extracted with cumulative variance of 41.8%.A significant and suitable correlation between the total scores of the participants Good death inventory-short form and care evaluation scale2.0 (r = 0.459, P < 0.001) and general satisfaction with end-of-life care (r = 0.423, p < 0.001) as well as the patient's general quality of life (r = 0.539, p < 0.001). The Cronbach's alpha coefficient for the questionnaire was found 0.842, and the stability was confirmed with Intra cluster correlation coefficient = 0.851.

CONCLUSION

the Persian version of good death inventory-short form is a valid and reliable questionnaire which can investigate the factors associated with good death according to patients' family members' perspective.

摘要

简介

在癌症患者的姑息治疗中，实现善终是目标之一。应该有一个工具来评估家庭成员在临终时提供的姑息治疗质量。这项研究旨在评估根据癌症患者家属的观点，善终清单-短表的心理测量特性。

方法

这是 2022 年在德黑兰的两家医院进行的一项方法学研究。翻译采用正向-反向方法进行。通过对 10 名家属进行认知访谈来评估表面效度。内容效度通过评估 10 名姑息治疗专家的意见来评估。通过探索性因子分析和与关怀评估量表 2.0 的收敛验证以及通过回答关于治疗满意度和生命终末期生活质量的两个一般问题来检查相关性来探索构念效度。使用 Cronbach 的 alpha 系数计算量表的可靠性、内部一致性和通过测试-重测检验的稳定性。

结果

共有 204 名癌症患者家属参与了研究。在探索性因子分析中，提取了三个因素，即和平、希望和价值观以及关怀质量，累积方差为 41.8%。参与者善终清单-短表的总分与关怀评估量表 2.0（r=0.459，P<0.001）和对临终关怀的总体满意度（r=0.423，P<0.001）以及患者一般生活质量（r=0.539，P<0.001）之间存在显著且适当的相关性。问卷的 Cronbach 的 alpha 系数为 0.842，内部一致性得到确认，组内相关系数=0.851。