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在社区提供临终关怀:马来西亚面临哪些挑战?

Providing End-of-Life Care in the Community: What Are the Challenges in Malaysia?

作者信息

Leong Yoke Yeng, Hamzah Ednin, McCarthy Sylvia, Lim Zee Nee

机构信息

Community Palliative Care, Hospis Malaysia, Kuala Lumpur, Malaysia.

出版信息

J Hosp Palliat Care. 2022 Sep 1;25(3):133-137. doi: 10.14475/jhpc.2022.25.3.133.

Abstract

A 72-year-old woman with metastatic lung cancer to bone and brain and with left external iliac vein thrombosis was under the care of a community palliative care provider. She experienced an acute pain crisis due to acute limb ischemia of the left lower limb. Goals-of-care discussions were held with the patient and her family; she prioritized symptom control and end-of-life care at home. The family and patient were aware of her short prognosis. Her complex pain was managed by the community palliative team, and her family was empowered to give subcutaneous injections. We illustrate a case showing the importance of community health services with palliative care support in providing symptom management and support to patient and family caregivers throughout the course of a life-limiting illness. It also highlights family caregivers' potential psychological distress in delivering subcutaneous injections in terminal care for a patient at home.

摘要

一名72岁的女性,患有骨和脑转移的肺癌以及左髂外静脉血栓形成,由社区姑息治疗提供者负责护理。她因左下肢急性肢体缺血经历了急性疼痛危机。与患者及其家人进行了护理目标讨论;她将症状控制和在家中接受临终关怀列为优先事项。家人和患者都清楚她预后不佳。社区姑息治疗团队对她的复杂疼痛进行了管理,并让她的家人有能力进行皮下注射。我们展示了一个案例,说明在生命有限疾病的整个过程中,社区卫生服务与姑息治疗支持在为患者和家庭护理人员提供症状管理和支持方面的重要性。它还凸显了家庭护理人员在家中为临终患者进行皮下注射时潜在的心理困扰。

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本文引用的文献

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Palliative care at home: carers and medication management.居家姑息治疗:护理人员与药物管理
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