Kang Kyung-Ah, Yu SuJeong, Kim Cho Hee, Lee Myung-Nam, Kim Sujeong, Kwon So-Hi, Kim Sanghee, Kim Hyun Sook, Park Myung-Hee, Choi Sung Eun
College of Nursing, Sahmyook University, Seoul, Korea.
Department of Nursing, Sangji University, Wonju, Korea.
J Hosp Palliat Care. 2022 Jun 1;25(2):85-97. doi: 10.14475/jhpc.2022.25.2.85.
This study aimed to describe nurses' perceived needs and barriers to pediatric palliative care (PPC).
Mixed methods with an embedded design were applied. An online survey was conducted for nurses who participated in the End-of-Life Nursing Education Consortium- Pediatric Palliative Care (ELNEC-PPC) train-the-trainer program, of whom 63 responded. Quantitative data were collected with a survey questionnaire developed through the Delphi method. The 47 items for needs and 15 items for barriers to PPC were analyzed with descriptive statistics. Qualitative data were collected through open- ended questions and analyzed with topic modeling techniques.
The mean scores of most subdomains of the PPC needs were 3.5 or higher out of 4, and those of PPC barriers ranged from 3.22 to 3.56, indicating the items in the questionnaire developed in this study properly reflect each factor. The needs for PPC were divided into 4 categories "children and adolescents," "families," "PPC management system," and "community-based PPC." Meanwhile, PPC barriers were divided into 3 categories "healthcare delivery system," "healthcare provider," and "client." The keywords derived from the topic modeling were perception, palliative, children, and education for necessities and lack, perception, medical care, professional care providers, service, and system for barriers to PPC.
In this study, by using mixed-methods, items of nurses' perceived needs and barriers to PPC were identified, categorized, and weighted, and their meanings were explored. For the stable establishment of PPC, the priority should be given to improving perceptions of PPC, establishing an appropriate system, and training professional care providers.
本研究旨在描述护士对儿科姑息治疗（PPC）的感知需求和障碍。
采用嵌入设计的混合方法。对参加临终护理教育联盟 - 儿科姑息治疗（ELNEC - PPC）培训师培训项目的护士进行了在线调查，其中63人做出了回应。通过德尔菲法开发的调查问卷收集定量数据。使用描述性统计分析了47项PPC需求项目和15项PPC障碍项目。通过开放式问题收集定性数据，并使用主题建模技术进行分析。
PPC需求的大多数子领域的平均得分在满分4分中为3.5或更高，PPC障碍的平均得分在3.22至3.56之间，表明本研究中开发的调查问卷中的项目正确反映了每个因素。PPC需求分为“儿童和青少年”、“家庭”、“PPC管理系统”和“社区PPC”4类。同时，PPC障碍分为“医疗服务提供系统”、“医疗服务提供者”和“客户”3类。从主题建模中得出的关键词为感知需求方面的姑息、儿童、教育必需品和缺乏，以及障碍方面的感知、医疗、专业护理提供者、服务和系统。
在本研究中使用混合方法，确定、分类并加权了护士对PPC的感知需求和障碍项目，并探讨了它们的含义。为了稳定建立PPC，应优先提高对PPC的认识，建立适当的系统，并培训专业护理提供者。
