Malloy Pam, Sumner Elizabeth, Virani Rose, Ferrell Betty
American Association of Colleges of Nursing, Washington, DC, USA.
MCN Am J Matern Child Nurs. 2007 Sep-Oct;32(5):298-302; quiz 303-4. doi: 10.1097/01.NMC.0000288000.87629.de.
Pediatric nurses must often care for children with life-threatening illness. Although the child may be a neonate with multiple organ failure, a young adolescent diagnosed with HIV, or a 7-year-old child involved in a serious bicycle accident, pediatric nurses are an essential part of the interdisciplinary team that plans, organizes, implements, and manages the care of these children and their families. To date, more than 600 pediatric nurses have attended a national End-of-Life Nursing Education Consortium-Pediatric Palliative Care (ELNEC-PPC) training program. Many of these nurses have returned to their institutions dedicated to making a difference in the palliative care provided to children and their families. Because pediatric palliative care education is so important, many trainers have incorporated ELNEC-PPC into their nursing orientation, annual competencies, and undergraduate and graduate nursing education. They are developing standards of care and serve on key hospital/hospice committees, such as policy, education, clinical care, and ethics committees. This article showcases various activities of ELNEC-PPC trainers and demonstrates their commitment to improve pediatric palliative care not only in their institutions but also on local, state, national, and international levels.
儿科护士常常需要照顾患有危及生命疾病的儿童。尽管患儿可能是患有多器官功能衰竭的新生儿、被诊断出感染艾滋病毒的青少年，或是遭遇严重自行车事故的7岁儿童，但儿科护士是跨学科团队的重要组成部分，该团队负责规划、组织、实施和管理对这些儿童及其家庭的护理。迄今为止，已有600多名儿科护士参加了全国临终护理教育联盟-儿科姑息治疗（ELNEC-PPC）培训项目。其中许多护士回到所在机构，致力于改善为儿童及其家庭提供的姑息治疗。由于儿科姑息治疗教育非常重要，许多培训师已将ELNEC-PPC纳入护士入职培训、年度能力考核以及本科和研究生护理教育中。他们正在制定护理标准，并在医院/临终关怀机构的关键委员会任职，如政策、教育、临床护理和伦理委员会。本文展示了ELNEC-PPC培训师的各种活动，并表明他们致力于不仅在所在机构，而且在地方、州、国家和国际层面改善儿科姑息治疗。
