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社区中为儿童提供服务的成人专科姑息治疗:一项范围综述。

Adult specialist palliative care services caring for children in the community: a scoping review.

作者信息

McDonnell Muireann, Connolly Michael, Bell Mary, Lawler Fiona

机构信息

Academic Department of Palliative Medicine, Our Lady's Hospice & Care Services, Dublin, Ireland.

UCD School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin 4, Belfield, Ireland.

出版信息

BMC Palliat Care. 2025 Jun 23;24(1):167. doi: 10.1186/s12904-025-01792-5.


DOI:10.1186/s12904-025-01792-5
PMID:40551103
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12183894/
Abstract

BACKGROUND: Adult specialist palliative care professionals have played a key role in the care of children with palliative care needs in the community. However, there is little known on their perceived level of preparedness or training in providing children's palliative care in the community setting. The aim of this scoping review is to appraise the current literature and identify any existing gaps in knowledge on the level of preparedness and training of adult specialist palliative care professionals caring for children in the community. The review question asks: "Do adult specialist palliative care professionals feel sufficiently prepared to deliver their services to children in the community?". METHODS: In order to address the review question, a scoping review was conducted. This was guided by the framework of Arksey and O'Malley and further enhanced by the methodology of the Joanna Brigg's Institute in order to report the findings. RESULTS: Twenty studies were identified from the database searches. Common areas identified from the literature were that adult specialist palliative care professionals perceived that they had a lack of training or experience in children's palliative care, lack of knowledge or preparedness, and that they faced barriers preventing them from providing effective children's palliative care. CONCLUSION: This review highlights the lack of empirical research on adult specialist palliative care professionals providing children's palliative care in the community. While the available literature demonstrates both their limited training, experience and preparedness in caring for children.

摘要

背景:成人专科姑息治疗专业人员在社区中为有姑息治疗需求的儿童提供护理方面发挥了关键作用。然而,对于他们在社区环境中提供儿童姑息治疗的准备程度或培训情况知之甚少。本范围综述的目的是评估当前文献,并确定在成人专科姑息治疗专业人员在社区照顾儿童的准备程度和培训方面的现有知识差距。综述问题是:“成人专科姑息治疗专业人员是否觉得自己有足够的准备在社区为儿童提供服务?” 方法:为了回答综述问题,进行了一项范围综述。这以阿克西和奥马利的框架为指导,并通过乔安娜·布里格斯研究所的方法进一步完善,以便报告研究结果。 结果:通过数据库检索确定了20项研究。文献中确定的常见领域是,成人专科姑息治疗专业人员认为他们在儿童姑息治疗方面缺乏培训或经验、缺乏知识或准备,并且他们面临阻碍他们提供有效儿童姑息治疗的障碍。 结论:本综述强调了关于成人专科姑息治疗专业人员在社区提供儿童姑息治疗的实证研究不足。虽然现有文献表明他们在照顾儿童方面的培训有限且经验不足、准备不够充分。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4335/12183894/67af5f28f59c/12904_2025_1792_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4335/12183894/67af5f28f59c/12904_2025_1792_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4335/12183894/67af5f28f59c/12904_2025_1792_Fig1_HTML.jpg

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本文引用的文献

[1]
Defining and quantifying population-level need for children's palliative care: findings from a rapid scoping review.

BMC Palliat Care. 2024-8-22

[2]
Nurses' Perceived Needs and Barriers Regarding Pediatric Palliative Care: A Mixed-Methods Study.

J Hosp Palliat Care. 2022-6-1

[3]
Impact of an Evidence-Based Pediatric Palliative Care Program on Nurses' Self-Efficacy.

J Contin Educ Nurs. 2022-6

[4]
Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States.

J Pain Symptom Manage. 2022-7

[5]
International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS.

J Pain Symptom Manage. 2022-5

[6]
Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination.

J Pain Symptom Manage. 2022-3

[7]
Children's palliative care education and training: developing an education standard framework and audit.

BMC Med Educ. 2021-10-25

[8]
Urgent Appeal From Hospice Nurses for Pediatric Palliative Care Training and Community.

JAMA Netw Open. 2021-10-1

[9]
Community Hospice Nurses' Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious Illness.

JAMA Netw Open. 2021-10-1

[10]
Healthcare Professionals' Experiences of the Barriers and Facilitators to Pediatric Pain Management in the Community at End-of-Life: A Qualitative Interview Study.

J Pain Symptom Manage. 2022-1

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