• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

实际帮助他人的伦理:针对技能习得目标,以促进自闭症谱系障碍患者获得有意义的成果

The Ethics of Actually Helping People: Targeting Skill Acquisition Goals That Promote Meaningful Outcomes for Individuals with Autism Spectrum Disorder.

作者信息

Bahry Shanna, Gerhardt Peter F, Weiss Mary Jane, Leaf Justin B, Putnam Robert F, Bondy Andy

机构信息

Endicott College, Beverly, MA USA.

Meaningful HOPE, East Providence, RI USA.

出版信息

Behav Anal Pract. 2022 Dec 12;16(3):672-695. doi: 10.1007/s40617-022-00757-x. eCollection 2023 Sep.

DOI:10.1007/s40617-022-00757-x
PMID:37680332
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10480108/
Abstract

As a field that predominately supports individuals with autism spectrum disorder (ASD), we have an ethical duty as behavior analysts to ensure that the goals we write and interventions we prescribe promote best outcomes across the lifespan. This is critical, given that as it stands now, outcomes in adulthood for individuals with ASD are poor in every area assessed. The can be interpreted to provide support for teaching the right goals, the right way, with respect to inherent rights of those we serve, in order to help affect positive changes in these outcomes. The present article highlights ethical themes that are relevant in order to affect these changes that are supported by the , as well as actionable steps to take next. The aim is to provide a resource for practitioners to use in clinical practice and in making ethical decisions that will help to improve outcomes for individuals with autism in adulthood. In addition, recommendations are made about integrating these values and approaches in terms of training, supervision, advocacy, and research.

摘要

作为一个主要为自闭症谱系障碍(ASD)患者提供支持的领域,作为行为分析师,我们有道义责任确保我们制定的目标和规定的干预措施能在整个生命周期内促进最佳结果。鉴于目前的情况,ASD患者成年后的各项评估结果都很差,这一点至关重要。这可以被解释为支持以正确的方式教授正确的目标,尊重我们所服务对象的固有权利,以帮助影响这些结果的积极变化。本文强调了与实现这些变化相关的伦理主题,以及接下来可采取的具体行动步骤。目的是为从业者提供一种资源,以便在临床实践中使用,并在做出伦理决策时加以运用,这将有助于改善自闭症患者成年后的结果。此外,还就如何在培训、监督、宣传和研究方面整合这些价值观和方法提出了建议。

相似文献

1
The Ethics of Actually Helping People: Targeting Skill Acquisition Goals That Promote Meaningful Outcomes for Individuals with Autism Spectrum Disorder.实际帮助他人的伦理:针对技能习得目标,以促进自闭症谱系障碍患者获得有意义的成果
Behav Anal Pract. 2022 Dec 12;16(3):672-695. doi: 10.1007/s40617-022-00757-x. eCollection 2023 Sep.
2
3
The future of Cochrane Neonatal.考克兰新生儿协作网的未来。
Early Hum Dev. 2020 Nov;150:105191. doi: 10.1016/j.earlhumdev.2020.105191. Epub 2020 Sep 12.
4
The Relationship of Age with the Autism-Spectrum Quotient Scale in a Large Sample of Adults.大量成年样本中年龄与自闭症谱系商数量表的关系
Autism Adulthood. 2021 Jun 1;3(2):147-156. doi: 10.1089/aut.2020.0010. Epub 2021 Jun 7.
5
Ethical Considerations of Behavioral Feeding Interventions.行为喂养干预的伦理考量
Behav Anal Pract. 2021 Mar 31;14(4):1157-1168. doi: 10.1007/s40617-021-00559-7. eCollection 2021 Dec.
6
Guidance for identification and treatment of individuals with attention deficit/hyperactivity disorder and autism spectrum disorder based upon expert consensus.基于专家共识的注意力缺陷/多动障碍和自闭症谱系障碍个体的识别和治疗指南。
BMC Med. 2020 May 25;18(1):146. doi: 10.1186/s12916-020-01585-y.
7
Culture of Care: Organizational Responsibilities关怀文化:组织职责
8
Fathers' Experience With Autism Spectrum Disorder: Nursing Implications.父亲们在自闭症谱系障碍方面的经历:护理启示
J Pediatr Health Care. 2016 Sep-Oct;30(5):453-63. doi: 10.1016/j.pedhc.2015.10.012. Epub 2015 Dec 15.
9
Do Individuals With Autism Spectrum Disorders Help Other People With Autism Spectrum Disorders? An Investigation of Empathy and Helping Motivation in Adults With Autism Spectrum Disorder.患有自闭症谱系障碍的个体是否会帮助其他患有自闭症谱系障碍的人?对自闭症谱系障碍成年人的同理心和帮助动机的调查。
Front Psychiatry. 2019 Jun 4;10:376. doi: 10.3389/fpsyt.2019.00376. eCollection 2019.
10
The Ethical Obligations, Barriers, and Solutions for Interprofessional Collaboration in the Treatment of Autistic Individuals.自闭症个体治疗中跨专业协作的伦理义务、障碍及解决方案
Behav Anal Pract. 2023 Apr 26;16(4):963-976. doi: 10.1007/s40617-023-00787-z. eCollection 2023 Dec.

本文引用的文献

1
Avoiding Ableist Language: Suggestions for Autism Researchers.避免使用歧视性语言:给自闭症研究者的建议。
Autism Adulthood. 2021 Mar 1;3(1):18-29. doi: 10.1089/aut.2020.0014. Epub 2021 Mar 18.
2
Health Care Service Utilization and Cost Among Adults with Autism Spectrum Disorders in a U.S. Integrated Health Care System.美国综合医疗保健系统中患有自闭症谱系障碍的成年人的医疗保健服务利用情况与成本
Autism Adulthood. 2019 Mar 1;1(1):27-36. doi: 10.1089/aut.2018.0004. Epub 2019 Mar 11.
3
Tact instruction for children with autism spectrum disorder: A review.针对自闭症谱系障碍儿童的社交技能训练:一项综述。
Autism Dev Lang Impair. 2021 Feb 24;6:2396941521999010. doi: 10.1177/2396941521999010. eCollection 2021 Jan-Dec.
4
Independent living in adults with autism spectrum disorder: Stakeholders' perspectives and experiences.自闭症谱系障碍成人的独立生活:利益相关者的观点和经验。
Res Dev Disabil. 2021 Dec;119:104085. doi: 10.1016/j.ridd.2021.104085. Epub 2021 Sep 30.
5
Autism Tsunami: the Impact of Rising Prevalence on the Societal Cost of Autism in the United States.自闭症海啸:自闭症在美国的流行率上升对社会成本的影响。
J Autism Dev Disord. 2022 Jun;52(6):2627-2643. doi: 10.1007/s10803-021-05120-7. Epub 2021 Jul 18.
6
Iterative Development of a Daily Living Skills Intervention for Adolescents with Autism Without an Intellectual Disability.自闭症青少年日常生活技能干预方案的迭代开发:无智力障碍。
Clin Child Fam Psychol Rev. 2021 Dec;24(4):744-764. doi: 10.1007/s10567-021-00360-6. Epub 2021 Jul 1.
7
Adults with Autism: Changes in Understanding Since DSM-111.自闭症成人:自 DSM-111 以来理解上的变化。
J Autism Dev Disord. 2021 Dec;51(12):4291-4308. doi: 10.1007/s10803-020-04847-z. Epub 2021 Jan 20.
8
Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden.成人自闭症患者日常生活技能与父母照顾者负担的相关性的实证评估。
PLoS One. 2021 Jan 5;16(1):e0244844. doi: 10.1371/journal.pone.0244844. eCollection 2021.
9
Post-High School Daily Living Skills in Autism Spectrum Disorder.自闭症谱系障碍患者的高中后日常生活技能
J Am Acad Child Adolesc Psychiatry. 2021 Aug;60(8):978-985. doi: 10.1016/j.jaac.2020.11.008. Epub 2020 Nov 18.
10
A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression.一项自闭症成人预后研究的荟萃分析:效应量的量化、质量评估及元回归分析。
J Autism Dev Disord. 2021 Sep;51(9):3165-3179. doi: 10.1007/s10803-020-04763-2. Epub 2020 Nov 17.