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实际帮助他人的伦理:针对技能习得目标,以促进自闭症谱系障碍患者获得有意义的成果

The Ethics of Actually Helping People: Targeting Skill Acquisition Goals That Promote Meaningful Outcomes for Individuals with Autism Spectrum Disorder.

作者信息

Bahry Shanna, Gerhardt Peter F, Weiss Mary Jane, Leaf Justin B, Putnam Robert F, Bondy Andy

机构信息

Endicott College, Beverly, MA USA.

Meaningful HOPE, East Providence, RI USA.

出版信息

Behav Anal Pract. 2022 Dec 12;16(3):672-695. doi: 10.1007/s40617-022-00757-x. eCollection 2023 Sep.

Abstract

As a field that predominately supports individuals with autism spectrum disorder (ASD), we have an ethical duty as behavior analysts to ensure that the goals we write and interventions we prescribe promote best outcomes across the lifespan. This is critical, given that as it stands now, outcomes in adulthood for individuals with ASD are poor in every area assessed. The can be interpreted to provide support for teaching the right goals, the right way, with respect to inherent rights of those we serve, in order to help affect positive changes in these outcomes. The present article highlights ethical themes that are relevant in order to affect these changes that are supported by the , as well as actionable steps to take next. The aim is to provide a resource for practitioners to use in clinical practice and in making ethical decisions that will help to improve outcomes for individuals with autism in adulthood. In addition, recommendations are made about integrating these values and approaches in terms of training, supervision, advocacy, and research.

摘要

作为一个主要为自闭症谱系障碍(ASD)患者提供支持的领域,作为行为分析师,我们有道义责任确保我们制定的目标和规定的干预措施能在整个生命周期内促进最佳结果。鉴于目前的情况,ASD患者成年后的各项评估结果都很差,这一点至关重要。这可以被解释为支持以正确的方式教授正确的目标,尊重我们所服务对象的固有权利,以帮助影响这些结果的积极变化。本文强调了与实现这些变化相关的伦理主题,以及接下来可采取的具体行动步骤。目的是为从业者提供一种资源,以便在临床实践中使用,并在做出伦理决策时加以运用,这将有助于改善自闭症患者成年后的结果。此外,还就如何在培训、监督、宣传和研究方面整合这些价值观和方法提出了建议。

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本文引用的文献

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Avoiding Ableist Language: Suggestions for Autism Researchers.避免使用歧视性语言:给自闭症研究者的建议。
Autism Adulthood. 2021 Mar 1;3(1):18-29. doi: 10.1089/aut.2020.0014. Epub 2021 Mar 18.
3
Tact instruction for children with autism spectrum disorder: A review.针对自闭症谱系障碍儿童的社交技能训练:一项综述。
Autism Dev Lang Impair. 2021 Feb 24;6:2396941521999010. doi: 10.1177/2396941521999010. eCollection 2021 Jan-Dec.
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Adults with Autism: Changes in Understanding Since DSM-111.自闭症成人:自 DSM-111 以来理解上的变化。
J Autism Dev Disord. 2021 Dec;51(12):4291-4308. doi: 10.1007/s10803-020-04847-z. Epub 2021 Jan 20.
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Post-High School Daily Living Skills in Autism Spectrum Disorder.自闭症谱系障碍患者的高中后日常生活技能
J Am Acad Child Adolesc Psychiatry. 2021 Aug;60(8):978-985. doi: 10.1016/j.jaac.2020.11.008. Epub 2020 Nov 18.

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