• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

一种肯定生命的重症和持久神经性厌食症姑息治疗模式。

A Life-Affirming Palliative Care Model for Severe and Enduring Anorexia Nervosa.

机构信息

Assistant professor of hospice and palliative medicine in the Division of General Internal Medicine at the University of Colorado Anschutz Medical Campus in Aurora.

Founding medical director of the Gaudiani Clinic in Denver, Colorado.

出版信息

AMA J Ethics. 2023 Sep 1;25(9):E703-709. doi: 10.1001/amajethics.2023.703.

DOI:10.1001/amajethics.2023.703
PMID:37695873
Abstract

Some individuals with severe and enduring anorexia nervosa experience dramatically degraded quality of life in the face of refractory illness and compulsory treatment. We propose a palliative care (PC) model for this group of patients that aims to support their unique goals of care, improve social-professional function, reduce physical suffering, and honor the whole person. Far from representing a pre-hospice model, a PC model for those with severe and enduring anorexia nervosa instead provides an alternative to current practices in hopes of meaningfully improving quality of life and outcomes.

摘要

一些患有严重和持久神经性厌食症的个体在面对难治性疾病和强制性治疗时,生活质量显著下降。我们为这群患者提出了姑息治疗 (PC) 模式,旨在支持他们独特的护理目标,改善社会职业功能,减轻身体痛苦,并尊重整个人。姑息治疗并不是代表临终前的模式,而是为那些患有严重和持久神经性厌食症的患者提供了一种替代当前治疗方法的选择,以期有意义地改善生活质量和结果。

相似文献

1
A Life-Affirming Palliative Care Model for Severe and Enduring Anorexia Nervosa.一种肯定生命的重症和持久神经性厌食症姑息治疗模式。
AMA J Ethics. 2023 Sep 1;25(9):E703-709. doi: 10.1001/amajethics.2023.703.
2
[A palliative approach for severest anorexia nervosa?].[一种针对最严重神经性厌食症的姑息治疗方法?]
Nervenarzt. 2020 May;91(5):411-416. doi: 10.1007/s00115-020-00875-3.
3
How Palliation Can Improve Care of Patients With Severe and Enduring Anorexia Nervosa.如何通过姑息治疗改善严重和持久神经性厌食症患者的护理。
AMA J Ethics. 2023 Sep 1;25(9):E668-673. doi: 10.1001/amajethics.2023.668.
4
A novel outpatient treatment model for patients with severe and enduring anorexia nervosa: an observational study of patient characteristics, treatment goals, and treatment course.一种针对严重且持续性神经性厌食症患者的新型门诊治疗模式:一项关于患者特征、治疗目标和治疗过程的观察性研究。
J Eat Disord. 2023 Sep 6;11(1):150. doi: 10.1186/s40337-023-00877-x.
5
Severe and Enduring Anorexia Nervosa and Futility: A Time for Every Purpose?严重和持久的神经性厌食症与无效:是否每个目的都有其时间?
Psychiatr Clin North Am. 2021 Dec;44(4):603-611. doi: 10.1016/j.psc.2021.08.003.
6
[Supportive care in the management of treatment-resistant and chronic anorexia nervosa].
Presse Med. 2014 Mar;43(3):263-9. doi: 10.1016/j.lpm.2013.03.009. Epub 2013 Jul 31.
7
"Ordinary days would be extraordinary": The lived experiences of severe and enduring anorexia nervosa.“平凡日子亦非凡”:重度及持续性神经性厌食症患者的生活经历
Int J Eat Disord. 2023 Dec;56(12):2273-2282. doi: 10.1002/eat.24058. Epub 2023 Sep 21.
8
Medical futility and psychiatry: palliative care and hospice care as a last resort in the treatment of refractory anorexia nervosa.医学无效性与精神病学:难治性神经性厌食症治疗的最后手段——姑息治疗和临终关怀。
Int J Eat Disord. 2010 May;43(4):372-7. doi: 10.1002/eat.20701.
9
Severe and enduring anorexia nervosa: Update and observations about the current clinical reality.严重及迁延性神经性厌食:当前临床现状的更新与观察。
Int J Eat Disord. 2020 Aug;53(8):1303-1312. doi: 10.1002/eat.23283. Epub 2020 May 2.
10
Terminal anorexia nervosa: three cases and proposed clinical characteristics.终末期神经性厌食症:三例病例及提出的临床特征
J Eat Disord. 2022 Feb 15;10(1):23. doi: 10.1186/s40337-022-00548-3.

引用本文的文献

1
Listening and learning: the need for a compassionate and patient-centered approach for longstanding AN.倾听与学习:对长期神经性厌食症采用富有同情心且以患者为中心的方法的必要性。
J Eat Disord. 2025 May 13;13(1):81. doi: 10.1186/s40337-025-01279-x.
2
Optimising Psychosocial Interventions for People With Severe and Enduring Eating Disorders (SEED) Perspectives of Healthcare Professionals in Ireland: A Qualitative Study.优化针对严重和持续性饮食失调患者的心理社会干预措施(SEED):爱尔兰医疗保健专业人员的观点:一项定性研究
Int J Ment Health Nurs. 2025 Apr;34(2):e70037. doi: 10.1111/inm.70037.
3
SEED-AN and a non-specialised, severe mental illness (SMI) community treatment model: perspectives of professionals and patients of a QoL-focussed treatment.
SEED-AN与一种非专业化的严重精神疾病(SMI)社区治疗模式:以生活质量为重点的治疗中专业人员和患者的观点。
J Eat Disord. 2024 Dec 24;12(1):213. doi: 10.1186/s40337-024-01172-z.
4
Eating Disorders: Updates and Innovations.饮食失调:最新进展与创新
Focus (Am Psychiatr Publ). 2024 Jul;22(3):369-371. doi: 10.1176/appi.focus.24022009. Epub 2024 Jun 28.
5
Ethical Challenges in the Treatment of Patients With Severe Anorexia Nervosa.重度神经性厌食症患者治疗中的伦理挑战
Focus (Am Psychiatr Publ). 2024 Jul;22(3):344-349. doi: 10.1176/appi.focus.20230035. Epub 2024 Jun 28.
6
Discordant conceptualisations of eating disorder recovery and their influence on the construct of terminality.饮食失调康复的不一致概念化及其对终结性概念的影响。
J Eat Disord. 2024 Jun 3;12(1):70. doi: 10.1186/s40337-024-01016-w.
7
Palliative Care Psychiatry: Building Synergy Across the Spectrum.缓和医疗精神医学:在整个领域建立协同作用。
Curr Psychiatry Rep. 2024 Mar;26(3):60-72. doi: 10.1007/s11920-024-01485-5. Epub 2024 Feb 8.
8
Anorexia nervosa through the lens of a severe and enduring experience: 'lost in a big world'.透过一段严重且持久经历的视角看神经性厌食症:“迷失在偌大的世界里”
J Eat Disord. 2024 Jan 22;12(1):12. doi: 10.1186/s40337-023-00953-2.