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一种肯定生命的重症和持久神经性厌食症姑息治疗模式。

A Life-Affirming Palliative Care Model for Severe and Enduring Anorexia Nervosa.

机构信息

Assistant professor of hospice and palliative medicine in the Division of General Internal Medicine at the University of Colorado Anschutz Medical Campus in Aurora.

Founding medical director of the Gaudiani Clinic in Denver, Colorado.

出版信息

AMA J Ethics. 2023 Sep 1;25(9):E703-709. doi: 10.1001/amajethics.2023.703.

Abstract

Some individuals with severe and enduring anorexia nervosa experience dramatically degraded quality of life in the face of refractory illness and compulsory treatment. We propose a palliative care (PC) model for this group of patients that aims to support their unique goals of care, improve social-professional function, reduce physical suffering, and honor the whole person. Far from representing a pre-hospice model, a PC model for those with severe and enduring anorexia nervosa instead provides an alternative to current practices in hopes of meaningfully improving quality of life and outcomes.

摘要

一些患有严重和持久神经性厌食症的个体在面对难治性疾病和强制性治疗时,生活质量显著下降。我们为这群患者提出了姑息治疗 (PC) 模式,旨在支持他们独特的护理目标,改善社会职业功能,减轻身体痛苦,并尊重整个人。姑息治疗并不是代表临终前的模式,而是为那些患有严重和持久神经性厌食症的患者提供了一种替代当前治疗方法的选择,以期有意义地改善生活质量和结果。

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