School of Nursing Graduate School of Nursing, Nagoya City University, Nagoya, Japan.
Graduate School, Nihon Fukushi University, Nagoya, Japan.
Compr Child Adolesc Nurs. 2024 Mar;47(1):7-19. doi: 10.1080/24694193.2023.2259472. Epub 2024 Feb 8.
This study aimed to identify the social care support provided by life story work and children's family relationships for children with disabilities in medical-type residential care facilities for children in Japan and the challenges thereof. The participants were 12 staff from residential care facilities for children with disabilities experienced in providing ongoing support to children admitted for social care purposes. Semi-constructive interviews on the life story work and support for family relationships practiced with children admitted to a residential care facility for children with disabilities for social care were conducted with the participants. The interviews were recorded and analyzed using thematic analysis. The analysis resulted in 32 codes, 10 sub-themes, and four main themes. The main themes were family form, children's thoughts on their family, support for family relationships, and readiness for life story work. In some cases, children were not informed about their negative situation, that is, the reason for admission or their family situation. This was due to the lack of a unified view on life story work among staff and insufficient organizational readiness. The results suggest the need for a unified understanding throughout the organization, as well as the need to disseminate the methodology of life story work for children with disabilities.
本研究旨在确定生活故事工作和儿童家庭关系为日本医疗型儿童福利院中的残疾儿童提供的社会关怀支持,以及其中存在的挑战。参与者为来自有残疾儿童的福利院的 12 名工作人员,他们有提供持续的社会关怀支持给入院儿童的经验。对参与生活故事工作和支持残疾儿童福利院中入院儿童家庭关系的半结构式访谈进行了记录和分析。分析结果产生了 32 个代码、10 个子主题和 4 个主要主题。主要主题包括家庭形式、儿童对家庭的想法、支持家庭关系和生活故事工作的准备。在某些情况下,儿童没有被告知他们的负面情况,即入院原因或家庭情况。这是由于工作人员对生活故事工作缺乏统一的看法以及组织准备不足所致。研究结果表明,需要在整个组织中达成统一的理解,同时需要传播残疾儿童生活故事工作的方法。