Glover Jacqueline, Bock Margret, Reynolds Regina, Zaretsky Michael, Vemulakonda Vijaya
Pediatrics, Center for Bioethics and Humanities, University of Colorado Anschutz Medical Campus, Children's Hospital Colorado, Aurora, CO, USA.
Pediatrics, Nephrology, University of Colorado Anschutz Medical Campus, Children's Hospital Colorado, Aurora, CO, USA.
J Perinatol. 2024 Mar;44(3):333-338. doi: 10.1038/s41372-023-01779-1. Epub 2023 Sep 21.
The Children's Hospital Working Group has developed an ethical framework to guide patient care and research for prenatally diagnosed severe renal anomalies. It identifies ethical challenges in communication, timing of decisions and scarce resources. Key elements include shared decision-making, establishing a trusting relationship, and managing disagreement. The ethical framework will be used to develop a clinical pathway that operationalizes the key values of trust, honesty, transparency, beneficence, nonmaleficence, respecting parental authority, professional integrity, and justice.
儿童医院工作组已经制定了一个伦理框架，以指导对产前诊断出的严重肾脏异常患儿的护理和研究。该框架确定了沟通、决策时机和资源稀缺方面的伦理挑战。关键要素包括共同决策、建立信任关系以及处理分歧。该伦理框架将用于制定一条临床路径，将信任、诚实、透明、行善、不伤害、尊重父母权威、职业操守和公正等关键价值观付诸实践。
