Jackie and Gene Autry Orthopedic Center, Children's Hospital Los Angeles, Los Angeles, California, USA.
Spina Bifida Clinic, Children's Hospital Los Angeles, Los Angeles, California, USA.
J Spinal Cord Med. 2024 Nov;47(6):977-986. doi: 10.1080/10790268.2023.2231675. Epub 2023 Sep 28.
Adolescents and young adults (AYA) with spina bifida (SB) are more susceptible to obesity due to impaired mobility There is limited access to physical activity for this population. The primary aim of this study was to evaluate the feasibility of a mobile health app in a weight management program for AYA with SB. This was determined by measuring program adherence, active use of the app (defined as ≥3 uses per week), and user rating of the Pt Pal™ mobile app. Secondary outcomes were changes in BMI, quality of life, and health behavior, and the number of active participants over time. Patients from the SB Clinic of a large metropolitan hospital between the ages of 11-21 years and overweight were invited to participate. The program consisted of group nutrition sessions and an individualized exercise plan using a mobile app with coaching. Outcome measures were program adherence, changes in BMI, and validated survey responses. Descriptive statistical analysis was performed. Fifteen participants enrolled, and ten participants completed the program. Five of the ten participants attended the nutrition sessions. The number of active app users declined after the first week. Seventy percent of participants decreased their BMI. Most participants reported the program improved their ability to exercise regularly, eat a healthier diet and feel more self-confident. Peds QL™ psychosocial health domains increased postintervention. The YRBS showed increased physical activity and less sedentary time postintervention. This mobile app-based weight management program with coaching implemented may not be feasible for adoption in the general population of AYA with SB; however, it was well received by some, and further testing is needed to determine how to improve feasibility. This study provides useful information to guide future programs utilizing digital health and coaching.
青少年和年轻人（AYA）患有脊柱裂（SB），由于活动能力受损，更容易肥胖。该人群获得身体活动的机会有限。本研究的主要目的是评估移动健康应用程序在 SB 青少年和年轻人体重管理计划中的可行性。这是通过测量计划依从性、应用程序的积极使用（定义为每周至少使用 3 次）以及用户对 Pt Pal™移动应用程序的评分来确定的。次要结果是 BMI、生活质量和健康行为的变化，以及随着时间的推移活跃参与者的数量。邀请来自大城市医院 SB 诊所的 11-21 岁超重患者参加。该计划包括小组营养课程和使用移动应用程序进行个性化运动计划，并提供指导。评估指标为计划依从性、BMI 变化和经过验证的调查回复。进行描述性统计分析。有 15 名参与者入组，10 名参与者完成了该计划。10 名参与者中有 5 名参加了营养课程。积极使用应用程序的人数在第一周后下降。70%的参与者降低了 BMI。大多数参与者表示该计划提高了他们定期锻炼、更健康饮食和更自信的能力。干预后 Peds QL™心理社会健康领域增加。YRBS 显示干预后体力活动增加，久坐时间减少。这种具有指导的基于移动应用程序的体重管理计划可能不适用于 SB 的 AYA 一般人群采用；然而，它得到了一些人的好评，需要进一步测试以确定如何提高可行性。本研究为利用数字健康和指导提供了有用的信息，以指导未来的计划。
