Alotaibi Qutaibah, Siden Harold
Pediatrics Department, Al Adan Hospital, Al Ahmadi Health District, Kuwait.
Canuck Place Children's Hospice, BC Children's Hospital, University of British Columbia, Vancouver, BC, Canada.
Palliat Care Soc Pract. 2023 Sep 29;17:26323524231201868. doi: 10.1177/26323524231201868. eCollection 2023.
Medical advances have increased the number of children living with life-threatening/life-limiting illnesses worldwide, including in Gulf Cooperation Council (GCC) countries. Pediatric palliative care (PPC) is a relatively young subspecialty that cares for children with life-threatening/life-limiting illnesses and their families. PPC aims to alleviate physical, psychological, and social distress in children with life-threatening/life-limiting illnesses and their families and improve their quality of life. PPC is an essential service that should be implemented in all nations, as it is a human right. Moreover, a core value of PPC services is to alleviate children's suffering, irrespective of cure availability. Hence, the global consensus on palliative services must be universal and include developing countries with limited resources. While PPC services are growing internationally, the GCC countries have yet to implement these valuable services in the region. This work aims to define the local base information important to facilitating the PPC program. We explored and identified the information vital for establishing a successful program, which was then categorized and mapped into subgroups. In doing so, we outline a roadmap to facilitate the smooth introduction of PPC in GCC countries to benefit the lives of children with life-limiting illnesses.
医学进步使全球患有危及生命/限制生命疾病的儿童数量增加，海湾合作委员会（GCC）国家也不例外。儿科姑息治疗（PPC）是一个相对年轻的亚专业领域，致力于照顾患有危及生命/限制生命疾病的儿童及其家庭。PPC旨在减轻患有危及生命/限制生命疾病的儿童及其家庭的身体、心理和社会痛苦，提高他们的生活质量。PPC是一项应在所有国家实施的基本服务，因为这是一项人权。此外，PPC服务的一个核心价值是减轻儿童的痛苦，无论是否有治愈的可能。因此，关于姑息治疗服务的全球共识必须是普遍的，包括资源有限的发展中国家。虽然PPC服务在国际上不断发展，但海湾合作委员会国家尚未在该地区实施这些有价值的服务。这项工作旨在确定对推动PPC项目至关重要的本地基础信息。我们探索并确定了建立一个成功项目所需的重要信息，然后将其分类并映射到各个子组中。通过这样做，我们勾勒出一条路线图，以促进在海湾合作委员会国家顺利引入PPC，从而造福患有限制生命疾病的儿童。
