Science Communication Unit, College of Health, Science and Society, University of the West of England, Bristol, United Kingdom.
Centre for Health and Clinical Research, College of Health, Science and Society, University of the West of England, Bristol, United Kingdom.
Front Public Health. 2023 Sep 19;11:1241239. doi: 10.3389/fpubh.2023.1241239. eCollection 2023.
The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of digital media for information and support. Public engagement can provoke a two-way conversation between researchers and the public and includes techniques that can engage the community not only with the topic but also in research. This perspective article considers the potential role of citizen science in death and dying research, including considerations around its potential benefits and constraints.
COVID-19 大流行使人们几代人以来首次开始关注死亡和临终话题。这引发了人们对死亡和临终观念、医疗保健和社区在护理中的作用以及数字媒体在信息和支持方面的使用的质疑。公众参与可以在研究人员和公众之间引发双向对话,其中包括可以使社区不仅参与主题而且参与研究的技术。本文从考虑公民科学在死亡和临终研究中的潜在作用的角度出发,探讨了其潜在的益处和限制。