Department of Nursing, College of Health Sciences, University of Sharjah, Sharjah, United Arab Emirates; School of Nursing, Paramedicine and Healthcare Sciences, Faculty of Science and Health Charles Sturt University, ORANGE, NSW, Australia.
Sheikh Shakhbout Medical City, Abu Dhabi, United Arab Emirates.
J Pediatr Nurs. 2023 Nov-Dec;73:204-210. doi: 10.1016/j.pedn.2023.09.028. Epub 2023 Oct 5.
Quality care for adolescents and young adults with chronic illnesses has been under-explored in the United Arab Emirates (UAE) and internationally, especially from patients' perspectives. Most available international studies focused on quality of life and the transition to adulthood rather than service quality.
This research assesses care quality for adolescents with chronic illnesses in the UAE, aiming to understand their perspectives, appraise current practices, and identify service gaps.
A cross-sectional survey employed a validated questionnaire examining 33 essential care components. Participants comprised 576 adolescents and young adults with chronic conditions from five UAE Emirates.
Participant's reports indicated that none of the 33 care elements were received consistently. Most participants (80.6%) reported crucial care aspects were absent, and across most investigated items, 19.4%-46.5% of participants reported receiving the services they were supposed to receive only some or many of the times, indicating significant areas for improvement.
Findings demonstrate significant care quality gaps for UAE's adolescents and young adults with chronic illnesses. These may critically affect their ability to manage their conditions and ensure holistic growth. These insights can guide healthcare enhancements tailored to this demographic.
There is an urgency for enhanced patient-centered care in UAE healthcare, emphasizing clinicians' roles in supporting adolescents with chronic illnesses, especially during transitions. Healthcare managers should prioritize standardized care policies, improved communication, and training that emphasizes consistent patient feedback and transition readiness. Further research into care gaps and tailored interventions within the region's distinct sociocultural setting is essential.
在阿拉伯联合酋长国（阿联酋）和国际上，青少年和年轻的慢性病患者的优质护理服务一直未得到充分探索，特别是从患者的角度来看。大多数现有的国际研究都集中在生活质量和向成年期的过渡上，而不是服务质量。
本研究评估了阿联酋青少年慢性病患者的护理质量，旨在了解他们的观点，评估当前的做法，并确定服务差距。
采用横断面调查，使用经过验证的问卷评估 33 项基本护理要素。参与者包括来自阿联酋五个酋长国的 576 名患有慢性疾病的青少年和年轻人。
参与者的报告表明，没有一项 33 项护理要素得到持续提供。大多数参与者（80.6%）报告说，关键的护理方面缺失，在大多数调查项目中，19.4%-46.5%的参与者报告只在某些时候或很多时候接受了他们应该接受的服务，这表明存在显著的改进空间。
研究结果表明，阿联酋的青少年和年轻的慢性病患者的护理质量存在显著差距。这可能严重影响他们管理病情和确保全面成长的能力。这些见解可以指导针对这一年龄段的医疗保健改进。
阿联酋的医疗保健服务迫切需要加强以患者为中心的护理，强调临床医生在支持慢性病青少年方面的作用，特别是在过渡期间。医疗保健管理人员应优先制定标准化的护理政策、改善沟通和培训，强调患者的持续反馈和过渡准备。进一步研究该地区独特的社会文化背景下的护理差距和针对性干预措施至关重要。
