Norouzkhani Narges, Bahari Ali, Shirvani Javad Shokri, Faramarzi Mahbobeh, Eslami Saeid, Tabesh Hamed
Department of Medical Informatics, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.
Department of Internal Medicine, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.
Front Psychol. 2023 Sep 21;14:1224279. doi: 10.3389/fpsyg.2023.1224279. eCollection 2023.
The present study introduces informational and supportive needs and sources of obtaining information in patients with inflammatory bowel disease (IBD) through a three-round Expert Delphi Consensus Opinions method.
According to our previous scoping review, important items in the area of informational and supportive needs and sources of obtaining information were elucidated. After omitting duplicates, 56 items in informational needs, 36 items in supportive needs, and 36 items in sources of obtaining information were retrieved. Both open- and close-ended questions were designed for each category in the form of three questionnaires. The questionnaires were sent to selected experts from different specialties. Experts responded to the questions in the first round. Based on the feedback, questions were modified and sent back to the experts in the second round. This procedure was repeated up to the third round.
In the first round, five items from informational needs, one item from supportive needs, and seven items from sources of obtaining information were identified as unimportant and omitted. Moreover, two extra items were proposed by the experts, which were added to the informational needs category. In the second round, seven, three, and seven items from informational needs, supportive needs, and sources of obtaining information were omitted due to the items being unimportant. In the third round, all the included items gained scores equal to or greater than the average and were identified as important. Kendall coordination coefficient W was calculated to be 0.344 for information needs, 0.330 for supportive needs, and 0.325 for sources of obtaining information, indicating a fair level of agreement between experts.
Out of 128 items in the first round, the omission of 30 items and the addition of two items generated a 100-item questionnaire for three sections of informational needs, supportive needs, and sources of obtaining information with a high level of convergence between experts' viewpoints.
本研究通过三轮专家德尔菲共识意见法，介绍了炎症性肠病（IBD）患者的信息和支持需求以及获取信息的来源。
根据我们之前的范围综述，阐明了信息和支持需求领域以及获取信息来源方面的重要项目。去除重复项后，检索到56项信息需求、36项支持需求和36项获取信息来源的项目。针对每个类别，以三份问卷的形式设计了开放式和封闭式问题。问卷发送给了不同专业的选定专家。专家在第一轮中回答问题。根据反馈，对问题进行修改并在第二轮中再次发送给专家。此过程重复进行至第三轮。
在第一轮中，5项信息需求、1项支持需求和7项获取信息来源的项目被确定为不重要并被省略。此外，专家提出了另外2项，被添加到信息需求类别中。在第二轮中，由于不重要，分别从信息需求、支持需求和获取信息来源中省略了7项、3项和7项。在第三轮中，所有纳入项目的得分均等于或高于平均分，并被确定为重要。信息需求的肯德尔协调系数W为0.344，支持需求为0.330，获取信息来源为0.325，表明专家之间的一致性水平尚可。
在第一轮的128个项目中，省略30个项目并增加2个项目后，生成了一份包含信息需求、支持需求和获取信息来源三个部分的100项问卷，专家观点之间具有高度的一致性。
