Cho Romy, Wickert Natasha M, Klassen Anne F, Tsangaris Elena, Marshall John K, Brill Herbert
Romy Cho, MD, is with Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada. Natasha M. Wickert, MSc, is with Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada. Anne F. Klassen, BA, DPhil, is with Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada. Elena Tsangaris, MSc, is with Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada. John K. Marshall, MD, MSc, FRCPC, AGAF, is with Department of Medicine, McMaster University, Hamilton, Ontario, Canada. Herbert Brill, MD, MBA, FRCPC, is with Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Gastroenterol Nurs. 2018 Jan/Feb;41(1):19-28. doi: 10.1097/SGA.0000000000000288.
Successful transitional care for young adults entails that healthcare teams recognize and understand the attitudes, perspectives, and developmental maturity of young adults. The aim of this study was to identify the needs of young adults with inflammatory bowel disease. Young adults 18-30 years of age were recruited from the McMaster University Medical Centre adult inflammatory bowel disease (IBD) clinic between July 2012 and May 2013. Semistructured interviews were audio taped, transcribed verbatim, and coded using a constant comparative method. QSR NVivo10 software was used to manage the data. Twenty-one young adults, including 15 subjects diagnosed as adolescents (younger than 18 years) and 6 subjects diagnosed as young adults, were interviewed. Four broad categories of needs were identified: psychosocial, informational, self-advocacy, and daily living needs. The most commonly reported needs were psychosocial and the least common were daily living needs. Results from this study may be used to inform clinical practitioners of potential needs that may be important to the overall quality of patient health during young adulthood. In addition, these findings may be used to evaluate existing transition and self-management tools to measure success of transition interventions more effectively.
为青年成年人提供成功的过渡性护理，要求医疗团队认识并理解青年成年人的态度、观点和发育成熟度。本研究的目的是确定患有炎症性肠病的青年成年人的需求。2012年7月至2013年5月期间，从麦克马斯特大学医学中心成人炎症性肠病（IBD）诊所招募了18至30岁的青年成年人。半结构化访谈进行了录音，逐字转录，并采用持续比较法进行编码。使用QSR NVivo10软件管理数据。共访谈了21名青年成年人，其中包括15名被诊断为青少年（18岁以下）的受试者和6名被诊断为青年成年人的受试者。确定了四大类需求：心理社会需求、信息需求、自我维权需求和日常生活需求。最常报告的需求是心理社会需求，最不常见的是日常生活需求。本研究结果可用于告知临床医生一些潜在需求，这些需求可能对青年成年期患者的整体健康质量很重要。此外，这些发现可用于评估现有的过渡和自我管理工具，以便更有效地衡量过渡干预措施的成功与否。
