Friesen-Storms Jolanda Hhm, Quadvlieg-Delnoy Danny Jl, van Kampen Roel Jw, van der Weijden Trudy, Beekman Emmylou, Bours Gerrie Jjw, Jie Kon-Siong G
Research Centre for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
Academy of Nursing, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
J Patient Exp. 2023 Oct 5;10:23743735231204470. doi: 10.1177/23743735231204470. eCollection 2023.
This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: "my health," "my activities," "my environment" and "my own way." Most challenges were experienced in the domain of "my health," which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.
本研究描述了淋巴瘤患者在生活各个领域面临的挑战、个人目标以及干预措施，这些内容源自与一名执业护士基于共同决策原则进行的随访咨询。采用横断面探索性设计，样本为49名患者。基于“我的健康”“我的活动”“我的环境”和“我的生活方式”这四个生活领域对挑战、目标和干预措施进行了评估。大多数挑战出现在“我的健康”领域，包括身体状况下降、肌肉力量减弱和疲劳。患者针对所经历的挑战设定了个人目标，比如将身体状况恢复到诊断前的水平。相应地，45名患者（84%）选择了改善身体状况和肌肉力量的干预措施，33名患者（67%）选择转诊至专科护理。
